Through a collection of video clips, CRY myheart cardiologist Dr Michael Papadakis has answered some of the most frequently asked questions (FAQs) about living with a potentially life threatening heart condition or an ICD.
These questions are split into sections below. Click on any question to open a new window where you can hear Dr Papadakis’ response. Also listed are videos recorded by myheart members where they have shared their experiences of having different tests and treatments.
I’ve just been diagnosed with Brugada Syndrome. I have two young children between the ages of four-and ten-what does this mean for them?
What does it mean if my children are gene positive but they-have a normal ECG and they have Brugada Syndrome?
If a diagnosis has been made, how often-should someone be re-tested?
What is the next stage after someone has been diagnosed with WPW?
Do inherited cardiac conditions get worse?
If a young person with an ASD was required to have an operation would they have to have open heart surgery?
Why is it important to monitor atrial septal defects?
What are the advantages of both the-Subcutaneous ICD and ICD?
I’ve been told I need an ICD, but I don’t want one. What else can I do to reduce my risk of a cardiac arrest?
Why are you advised against playing contact sports if you have an ICD?
What are the limitations of an ICD?
Are there certain sports you should avoid with an ICD and others you can engage in?
Will an ICD always protect me from having a cardiac arrest?
I have an ICD fitted. Should I tell my university and work etc?
Does everyone with a condition need an ICD or a pacemaker?
Why is it important to get the settings of an ICD right?
Debate between Dr Papadakis and myheart members, Paula and Joseph about exercising with an ICD
Will the diagnosis affect my travel insurance?
Can I continue to drive after being diagnosed with a condition?
Can I get pregnant after being diagnosed with a cardiac condition?
What should you avoid if you have an ion-channel disease?
What should you avoid when you have a cardiomyopathy?
I have been diagnosed with a cardiac condition-will it affect my sex life?
Do young individuals with cardiac conditions need to worry about going skiing?
Exercise and cardiac conditions
At what level does exercise become unhealthy?
I’ve been diagnosed with an inherited cardiac condition. How much exercise can I do?
What advice would you give to someone who has been told to limit exercise but doesn’t want to?
Why is individualised exercise prescription important?
Family screening information after a diagnosis
I’ve recently been told I am gene positive for Long QT. Should I have my children tested?
I’ve just been diagnosed with an inherited cardiac condition. Who else in my family needs to be screened?If there is an inherited condition in a family, at what age can the children be screened?
I have an inherited cardiac condition. Do I need to be concerned about my grandchildren?
Why don’t we do ajmaline tests on younger children?
How long do the tests take?
Do I need gene testing for inherited cardiac conditions?
Why is it important to identify problems with heart valves?
Videos from myheart members sharing their experiences
Tim Butt talks about his ablation
Living with Brugada syndrome-Paula Beck Simmonds
Joseph Tanner talks about getting an ICD implanted
Tim Butt talks about his EP procedure
Zenia Selby talks about her ablation
Cat Burns doing an abseil for CRY