Currently myheart holds meetings twice a year in a central location for young people, between 18 and 35, who have suddenly been diagnosed with a life threatening heart condition. Anybody with a cardiac condition between the ages of 18 and 35 can come to the meetings if they:

  • Have been offered or already have an ICD
  • Have suffered a cardiac arrest
  • Have been diagnosed with an inherited or potentially inherited cardiac disease

Given the complexity of some conditions we recognise that there will always be a need to consider some cases on an individual basis.

Young people can gain support through meetings and talking to others in a similar situation, hearing the different ways they have coped and discussing any issues that have arisen since their diagnosis. Read feedback from other members of the myheart network who have attended meetings in the past and how they have benefited.

Meetings are free to attend and give an opportunity to meet and discuss experiences in an informal but supportive environment.

There is also a Q and A session with CRY myheart cardiologist, Dr Michael Papadakis who specialises in dealing with young people diagnosed with one of these complicated conditions. CRY will also cover reasonable travelling expenses on submission of receipts after the event. Unfortunately CRY is unable to refund any other expenses, such as accommodation if you stay in London to attend the event.

If you are interested in attending or would like more information about CRY’s myheart meetings please call CRY’s myheart coordinator on 01737 363 222 or email myheart@c-r-y.org.uk.

Whilst the myheart meetings are exclusively for young people aged 18-35 living with a cardiac condition, we have an online network which can be joined by anyone over the age of 18 who has suddenly been diagnosed with a cardiac condition. You can find more information about this at: https://www.myheart.org.uk/online-support/private-facebook-support-group/