Currently myheart holds meetings twice a year in a central location for young people, between 18 and 35, who have suddenly been diagnosed with a life threatening heart condition. Anybody with a cardiac condition between the ages of 18 and 35 can come to the meetings if they:

  • Have been offered or already have an ICD
  • Have suffered a cardiac arrest
  • Have been diagnosed with an inherited or potentially inherited cardiac disease

Given the complexity of some conditions we recognise that there will always be a need to consider some cases on an individual basis.

Young people can gain support through meetings and talking to others in a similar situation, hearing the different ways they have coped and discussing any issues that have arisen since their diagnosis. Read feedback from other members of the myheart network who have attended meetings in the past and how they have benefited.

Meetings are free to attend and give an opportunity to meet and discuss experiences in an informal but supportive environment.

There is also a Q and A session with CRY myheart cardiologist, Dr Michael Papadakis who specialises in dealing with young people diagnosed with one of these complicated conditions. CRY will also cover reasonable travelling expenses on submission of receipts after the event. Unfortunately CRY is unable to refund any other expenses, such as accommodation if you stay in London to attend the event.

If you are interested in attending or would like more information about CRY’s myheart meetings please call CRY’s myheart coordinator on 01737 363 222 or email myheart@c-r-y.org.uk.

Whilst the myheart meetings are exclusively for young people aged 18-35 living with a cardiac condition, we have an online network which can be joined by anyone over the age of 18 who has suddenly been diagnosed with a cardiac condition. You can find more information about this at: https://www.myheart.org.uk/online-support/private-facebook-support-group/ 

Upcoming myheart meeting

The next myheart meeting is planned for Saturday, 24th April, 2021. The registrations for this meeting are now open. Go to: www.myheart.org.uk/online-myheart-meeting-with-dr-sabiha-gati-saturday-24th-april-2021/ to register. 

In 2013, a welcome grant from “Jeans for Genes” enabled CRY to hold myheart meetings. 
A grant from “Global’s Make Some Noise” helped fully fund the national November 2015 myheart meeting.** 
**Global’s Make Some Noise is a national charity that helps disadvantaged children and young people across the UK. 
Global, the Media & Entertainment company, which is home to the famous brands Heart, Capital FM, Classic FM, Smooth, LBC, Capital Xtra, XFM and Gold, has pulled together all its stations, reaching a combined 23.2 million people every week, to unite behind one cause. 

Currently myheart holds meetings several times a year just outside London for previously fit and healthy young people between 14 and 35 who have suddenly been diagnosed with a life threatening heart condition. Meetings are free to attend and give the members an opportunity to meet and discuss their experiences in an informal but supportive environment.

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A welcome grant from “Jeans for Genes” has enabled CRY to expand their support service. In 2012 this will include meetings in the North (in Leeds) and in the Midlands (in Birmingham).

myheart will now be holding parents group counselling sessions. These sessions are for parents whose previously fit and healthy child has suddenly been diagnosed with a dangerous heart condition. The sessions are independent of the myheart meetings for young people diagnosed with a heart condition. Parents can attend regardless of whether their child attends the myheart meeting.

If you are interested in attending or would like more information about the meetings please call Karla Griffith at the CRY office on 01737 363 222 or email karla@c-r-y.org.uk.

The first North of England myheart meeting will be held on Sunday 29th April in Leeds at The Queens Hotel. There is no charge for the event which includes lunch.

The day will begin with group counselling addressing the difficult social issues that can arise after your diagnosis. This session is with Jayne Slack, a Senior Counsellor who works with The Yorkshire Heart Centre. After lunch there will be an informal Q and A session with Dr Campbell Cowan (Consultant Cardiologist at Leeds General Infirmary) and Craig Russell (an ICD/Arrhythmia Specialist Nurse at Leeds General Infirmary) who are very experienced in looking after previously fit and healthy young people with heart conditions. It will provide you with an opportunity to ask those questions you might perhaps have felt uncomfortable about asking your own consultant.

It does not matter whether you were diagnosed a while ago or just recently – please come.

Directions to the Queens Hotel can be found at: http://www.qhotels.co.uk/hotels/the-queens-leeds-yorkshire/how-to-find-us.aspx

Jayne Slack will also be taking a parents group counselling session in the afternoon between 14.00 and 16.00. This is for parents whose previously fit and healthy child has been suddenly diagnosed with a dangerous heart condition.

These sessions are independent of the myheart meetings for young people diagnosed with a heart condition. Parents can attend regardless of whether their child attends the myheart meeting.

PLEASE NOTE: Any parents wanting to attend must first be registered with CRY.

Places are limited so please register on the attached form to book your place and email this to: myheart Co-ordinator Karla at karla@c-r-y.org.uk. If you have any further questions please call Karla at CRY on 01737 363 222.

Registration Form – myheart meeting
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Registration Form – Parents of myheart group counselling
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The first Midlands myheart meeting will be held on Sunday 20th May in Birmingham at The Macdonald Burlington Hotel. There is no charge for the event which includes lunch.

(Directions can be found at: http://www.macdonaldhotels.co.uk/our-hotels/macdonald-burlington-hotel/useful-information/)

The day will begin with group counselling addressing the difficult social issues that can arise after your diagnosis. This session will be facilitated by Jayne Slack, a Senior Counsellor who works with The Yorkshire Heart Centre. After lunch, there will be an informal Q and A session with Dr Michael Griffith, (the Consultant Cardiologist at Queen Elizabeth Hospital) who is very experienced in looking after previously fit and healthy young people with heart conditions. This session will provide you with an opportunity to ask those questions you might perhaps have felt uncomfortable about asking your own consultant.

It does not matter whether you were diagnosed a while ago or just recently – please come.

Jayne Slack will also be taking a parents group counselling session in the afternoon between 14.00 and 16.00. This is for parents whose previously fit and healthy child has suddenly been diagnosed with a dangerous heart condition.

These sessions are independent of the myheart meetings for young people diagnosed with a heart condition. Parents can attend regardless of whether their child attends the myheart meeting.

PLEASE NOTE: Any parents wanting to attend must first be registered with CRY.

Places are limited so please register on the attached form to book your place and email this to: myheart Co-ordinator Karla at karla@c-r-y.org.uk. If you have any further questions please call Karla at CRY on 01737 363 222.

Registration Form – myheart meeting
Please save document and open with Microsoft Word.

Registration Form – Parents of myheart group counselling
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South East myheart Meeting – Sunday 29th July, 10am – 4pmReigate Manor Hotel, Reigate Hill, Reigate, Surrey, RH2 9PFThe morning group support session provides the opportunity to share your experiences with the other members of the group addressing the difficult social issues that can arise after your diagnosis and learn how others have coped since theirs. This session will be facilitated by the CRY counsellor, Alan Jones. In the afternoon there will be a medical question & answer session with Dr Michael Papadakis where you can ask any questions you perhaps felt uncomfortable about asking your own doctor or any questions that have come up during the day.

It does not matter how long ago you were diagnosed or whether you are undergoing any sort of treatment at the moment – please come.

Directions can be found at: http://www.reigatemanor.co.uk/findus

The day will be relaxed and informal and is fully funded by CRY with lunch provided.

If you would like to attend please fill in the registration form below and return to myheart coordinator, Karla at karla@c-r-y.org.uk by June 18th.

Registration Form – myheart meeting
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Parents group counselling

Alan Jones will be facilitating a parents group counselling session in the afternoon between 14.00 and 16.00. This will be for parents whose previously fit and healthy child has suddenly been diagnosed with a dangerous heart condition.

This session is independent of the myheart meetings for young people with a heart condition. Parents can attend regardless of whether their child attends the myheart meeting.

Places are limited so please register on the attached form to book your place and email this to: myheart coordinator Karla at karla@c-r-y.org.uk by June 18th. If you have any further questions please call Karla at CRY on 01737 363 222.

Registration Form – Parents of myheart group counselling

Please save document and open with Microsoft Word.