CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
I had no idea at the end of the summer holidays in 2011 that the following months would be a defining period of my life.
myheart cardiologist, Dr Sabiha Gati, will be filming answers to questions our members have about myocarditis to create a FAQ’s about myocarditis. Do you have
Dear myheart members Thank you to all of you who are helping raise funds and awareness of Cardiac Risk in the Young (CRY) and myheart in these
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to
A myheart members’ video meeting is planned between 1pm-3pm on Saturday 17th October, 2020. Registered members can start logging in from 12:45pm. Meetings are free to
We are sometimes contacted by myheart members who are looking for more information about insurance. Kathryn Knowles, Managing Director of Cura Financial Services, has created
Hello. My name is Phoebe and I’m 22 years old. When I was three years old, I was admitted to Great Ormond Street Hospital to
Our last blog post on CRY’s screening programme focused on the early years. We looked back to when our testing was just getting underway and how we
Have you ever wondered why a teddy in a t-shirt sometimes pops up on CRY’s posters or turns up at events? Why would one of
CRY Founder Alison Cox MBE first had the idea to offer cardiac screening to young people in 1993. Alison discussed this with Professor William McKenna,
