CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
Please find in this e-newsletter information on: New booklet on ablation Heart Month-February Dr Steven Cox, responds to the latest (Dec 2019) recommendations from the
On May 11 we hosted the first CRY Family Research Day, giving some of our supporters a chance to learn more about the massive impact
Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready
I have always fainted for as long as I can remember, through assembly at school or if I stood up for long periods of time.
Michael Papadakis cannot remember a time that he did not want to be a doctor. His mother, devoted to her husband and children, was a
“Just prior to Christmas Day, the UK National Screening Committee published its conclusion to the consultation reconfirming the UK NSC does not recommend systematic population
A myheart members’ meeting is planned at Friends House, 173-177 Euston Road, London NW1 2BJ, between 10am-3pm on Saturday 14th March, 2020. Registrations begin at 9:30am.
Cardiac Risk in the Young (CRY) would like to thank all those that voted for us in the Tesco Bags of Help Centenary Grant initiative. CRY
My Long QT story – by Jodie Pearson, age 36 I was diagnosed with Long QT1 in 2010 when I was 27 years old. My
I would like to share our story to help raise awareness of fatal Genetic Heart Conditions. In March 2016, our daughter – Hollie Cannon, then
It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my
Many people encounter CRY for the first time as a result of a sudden death of a young person. Whilst this will always be a
MedicAlert have kindly agreed to extend their offer of a 15% discount to all myheart members to 31st December 2019. “MedicAlert is the only charity
