CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
If you have symptoms suggestive of the virus that you feel are not controlled at home, please be guided by the NHS 111 website at
Being in lockdown, being in isolation it’s made me re-experience a life I had before and compare the feelings I have now, to that I
This is the first part of CRY’s “Looking Back at 25” series. As we mark our 25th year anniversary, these articles will remember key parts
A myheart members’ video meeting is planned between 5pm-7pm on Saturday 3rd April, 2020. Registered members can start logging in from 4:45pm. Meetings are free to
I have a heart condition. Am I at more risk of getting COVID-19 than somebody who doesn’t have a heart condition? No – the infection
Monday 16th March I celebrated my 12th re-birthday, re-birthday is a term that all cardiac arrest survivors use to celebrate surviving a cardiac arrest. I
Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to
Dear myheart members We hope you are remaining positive and embracing the significant changes ahead of us all during these difficult times associated with the
CRY is thrilled to have a growing group of Ambassadors. This position was introduced for people who have achieved recognition in their chosen field, who
How is it different working with a young population with cardiac conditions? A typical day’s work involves assessing patients aged between 18 and 25 years
Please find in this e-newsletter information on: New booklet on ablation Heart Month-February Dr Steven Cox, responds to the latest (Dec 2019) recommendations from the
On May 11 we hosted the first CRY Family Research Day, giving some of our supporters a chance to learn more about the massive impact
