CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
Since being diagnosed with my heart condition at 16 years old, I’ve been trying to understand my body, to understand my limitations and capabilities. That
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
A myheart members’ video meeting was held between 1pm-3pm on Saturday, 23rd October, 2021. Meetings are free to attend and give members an opportunity to meet
What is aortic disease? The aorta is the largest tube (artery) that carries blood cells containing oxygen around the body to your vital organs. The
Every year, KCL Tennis hosts a tournament with the aim of raising money for a chosen charitable organisation. This year, we chose to raise money
Dear myheart members Thank you to all of you who are helping raise funds and awareness of Cardiac Risk in the Young (CRY) and myheart in these
October 2018, aged 14 and asymptomatic- I was taken to a CRY screening as a precautionary check by my mum at St. George’s Hospital. Little
After serving nine years in the military as a Royal Marines Commando, I needed a new challenge and started striving towards a career as a
We are delighted to announce that registration for CRY Heart of London Bridges Walk is now open. This year is a very special year for
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. May 4, 2021
For the first time in 12 years, I experienced my first incident of an inappropriate shock. Not just one, but five, one after the other.
March 31, 2021 Re: Revision to the QTdrugs List We are writing to inform you that two newly marketed drugs in the US, Ponesimod for treatment of
Dear myheart members Thank you to all of you who are helping raise funds and awareness of Cardiac Risk in the Young (CRY) and myheart in these
