Our world fell apart 3 years ago when three of us Morris gang (Thomas, Xander and Jude) were diagnosed with a genetic critical heart condition called LQTS. 

Having never had major health issues before, to being told I was very lucky to be alive certainly changed my perspective on life. 🌅

Now several years later, I’ve come to realise we were the lucky ones. We’re now medicated which makes it very unlikely we will have a cardiac event, and our wonderful life goes on as normal, if not a bit challenging when it comes to stairs and needing to raise our heart rates!

I wanted to prove to my boys and anyone else medicated that amazing things are possible…

All in support of CRY and to raise awareness, in 2022 we completed our first ultra marathon. 14 hours of trekking and jogging over mountain paths!  In 2023 we just about completed our 2nd – it was a very hot day.🥵 

This year, my amazing wife and I completed 3, yes THREE, ultras – one in the North, one in the Midlands and one in the South. All whilst my HR is limited to 120 BPM and carrying 10 kg of defib 😰 I’m so proud of what we’ve achieved and even better is the money we have raised for this great charity.  We’ve raised £6000 in 3 years and we’re very grateful for the donations.

Next?  Another crazy physical challenge is on the cards, but in the meantime, we’ll be putting in the 100s of hours of training required for events such as this.

CRY is grateful to its supporters for raising awareness and for their amazing fundraising efforts. It is important that young people with cardiac conditions have individualised exercise prescription following their diagnosis to ensure they understand if there are any risks associated with exercise, and what those risks are. If you have a cardiac condition, we recommend you consult your cardiologist before taking part in intensive exercise.