Empowering Hearts: Dr. Joyee Basu’s Groundbreaking Research Redefines Exercise Guidelines for Hypertrophic Cardiomyopathy Patients
CRY’s Research Fellows – both past and present – have an outstanding reputation of submitting and publishing papers, sharing and showcasing their projects with peers and key decision makers and presenting findings at UK and international conferences. The issue around the impact of exercise and physical activity on young people living with a heart condition […]
National myheart meeting-16th March,2024
A myheart members’ meeting was held at Friends House, 173-177 Euston Road, London NW1 2BJ, between 2pm-5pm on Saturday 16th March 2024. Please find the feedback form below for the meeting below. There was a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members asked questions they had about their condition, the […]
Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: December 12, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: […]
Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young Friday October 20th saw the welcome return of CRY’s Annual Medical Conference to an ‘in person’ event (following three years of remote access) – with a new venue for 2023, The Curve Lecture […]
Focus group for patients with DCM and ARVC
On the 29th of September, a focus group for patients with dilated and arrhythmogenic cardiomyopathy has been organized by CRY and by Dr Gherardo Finocchiaro, Consultant Cardiologist at St George’s Hospital and Honorary Senior Lecturer and St George’s University of London. Dr Finocchiaro and his team at St George’s Hospital are aiming to organize a randomised […]
myheart enews-Jun to Sept 2023
Dear myheart members, In this e-newsletter you can find information about: Read the full enews here. Subscribe to myheart enews here to receive latest myheart and CRY updates.
Medicine and Me Conference
Talks included*: 0:00 to 5:30 – Welcome and introduction – Dr Steven Cox1:12:00 to 1:27:00 – How can we identify young people with cardiac conditions – Professor Sanjay Sharma1:27:00 to 1:46:00 – How do we risk stratify young people identified with cardiac conditions – Professor Michael Papadakis1:46:00 to 2:02:00– How often should patients with cardiac conditions be tested/re-tested? – Professor Sanjay Sharma2:02:00 to […]
If cardiac screening was available to me, I wouldn’t have had to go through this trauma by Cara Bunn
It was October 2021 – I’d recently just come back off holiday abroad for my 21st birthday and I wasn’t feeling myself at all. I had developed a cough but thinking it was due to me coming back to the colder weather I didn’t think twice about it. One morning before work while getting ready […]
myheart hard copy newsletter-2022
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
You never think this is going to happen to someone young…by Megan Turner
Dec 2021 was a scary time for me and my family. I gave birth to my beautiful baby boy on the 11th and on the 17th, I had a sudden cardiac arrest, I got shocked 3-4 times, but my heart just wouldn’t settle. I died for a good 40 minutes but I wasn’t giving up! […]