Skip to content

CRY’s Expert Medical Team: Professor Sanjay Sharma

By Alison Cox, from issue 82 of the CRY Update magazine I finally confirmed that Sanjay was not your average person when he told me – during a discussion we were having on reminiscing – that he started writing his thoughts and experiences down when he was four. He was a serious, curious child and wanted to know about and remember

Looking Back: The history of myheart

Since CRY was first launched in 1995, there’s always been a huge focus on supporting families and individuals through the aftermath of a young sudden cardiac death – as well as funding research and screening to help prevent these devastating tragedies. That focus has never wavered in CRY’s 25-year history and has been at the forefront of our work and

Interview with Consultant Cardiologist Dr Sabiha Gati on FAQ’s about myocarditis

Myocarditis is an inflammatory process involving the heart muscle. It can present acutely (suddenly), sub-acutely (of recent onset) or as a chronic disease (weeks or months later). It may present with focal involvement (at a specific location) or diffuse involvement (over a widespread area) of the heart muscle. When individuals have symptoms, these can be highly variable from generalised tiredness,

How CRY’s research impacted the investigation/management of people at risk of sudden cardiac death

CRY’s latest webinar  held on the 17th December 2020 with CRY’s Consultant Cardiologist Dr Michael Papadakis –  Dr Papadakis gave a presentation on how CRY’s research has impacted the investigation and management of people with conditions that can cause sudden cardiac death.  After the presentation, there was a Q&A session with Dr Papadakis. https://www.youtube.com/embed/1klMeWTDyfU

Update to CredibleMeds List

We have received the following update from CredibleMeds: December 17, 2020 Re: Revision to the QTdrugs List We are writing to inform you that Sertindole, a drug used in the treatment of schizophrenia, has been moved from the Possible Risk of Torsades de Pointes (TdP) category to the Known Risk of TdP category because of newly available evidence that it is associated

myheart enews October-November 2020

Dear myheart members Thank you to all of you who are helping raise funds and awareness of Cardiac Risk in the Young (CRY) and myheart in these unprecedented times. Please find in this newsletter information on: Sanjay Sharma’s FAQ’s on CRY’s ResearchCRY Raising Awareness Week and Great Cake Bake 2020Blog by myheart members, Daniel Redfearn and Ruth WilliamsFAQ’s about myocarditisPrivate myheart Facebook group Read the

My story of being diagnosed with LQT in the midst of a pandemic by Ruth Williams

In April of this year, I was diagnosed with Long QT Syndrome (LQTS). In the midst of a pandemic, this was the most unwelcome conclusion to my ongoing investigations! In 2001, my sister Ellie died very suddenly whilst on a telephone call with me one morning. I found her body later that day with the phone still in her hand.