I have a heart condition but it’s not the end of the world!-by Gem O’Reilly
Since being diagnosed with my heart condition at 16 years old, I’ve been trying to understand my body, to understand my limitations and capabilities. That has stemmed into my life in many ways, particularly when it comes to challenging my body and perceptions of what makes a healthy lifestyle. It has led to me running long distance in a way
myheart hard copy newsletter
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
Online myheart meeting with Dr Sabiha Gati-Saturday, 23rd October, 2021
A myheart members’ video meeting was held between 1pm-3pm on Saturday, 23rd October, 2021. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed or whether you
KCL Tennis Rally for CRY by Dan Redfearn
Every year, KCL Tennis hosts a tournament with the aim of raising money for a chosen charitable organisation. This year, we chose to raise money for Cardiac Risk in the Young (CRY). As a university sports team, we felt this was a good cause to focus on. We hoped that through fundraising for CRY, we would also be able to
myheart enewsletter Apr-May 2021
Dear myheart members Thank you to all of you who are helping raise funds and awareness of Cardiac Risk in the Young (CRY) and myheart in these unprecedented times. Please find in this newsletter information on: CRY Heart of London Bridges Walk 2021-Registration OpenBlog by myheart member, Jamie PooleUpdate to the CredibleMeds ListOffer from MedicAlertPrivate myheart Facebook group Read the full enews here. Subscribe
Life with LQTS and LVNC by Abi Edwards
October 2018, aged 14 and asymptomatic- I was taken to a CRY screening as a precautionary check by my mum at St. George’s Hospital. Little did I know that that test would be the beginning of a whole new journey in my life. I was told that they had picked up an abnormality and they thought it would be LQTS,
Every Cloud by Thomas Flanighan
After serving nine years in the military as a Royal Marines Commando, I needed a new challenge and started striving towards a career as a Commercial Pilot. The flying medical involved an ECG which showed abnormal results. At the time, I was not concerned as the Doctor who performed it was almost certain it was ‘Athletic Heart’. They asked me
CRY Heart of London Bridges Walk 2021-Registration Open
We are delighted to announce that registration for CRY Heart of London Bridges Walk is now open. This year is a very special year for our flagship event as it marks the 15th anniversary of the walk. This is an incredible milestone and we would love for you to join us on Sunday, 27th June from wherever you are in
Update from Credible Meds
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. May 4, 2021 Re: Revision to the QTdrugs List We are writing to inform you that three new drugs have been added and one removed from the Possible Risk of TdP category. Two drugs used for androgen deprivation therapy (Bicalutamide and
It’s Scarier Not to Die by Jamie Poole
For the first time in 12 years, I experienced my first incident of an inappropriate shock. Not just one, but five, one after the other. Bang. Bang. Bang. Bang. Bang. To say it was painful would be a gross understatement. It was a combination of the most painful experience of my life, mixed with the most terrifying. Not only was