The rhythm of her heart – raising money in aid of CRY

I chose the title ‘The Rhythm of her Heart’ because that was the first song I wrote when I was diagnosed with my heart condition, Long QT Syndrome, at 16 years old. Being a teenager and diagnosed with a life threatening heart condition is not something one can process easily. I used music to process the shock, fear and anxiety I suddenly felt.

I thought I would be in and out in 10 mins after having an ECG but… by Laura Harris

My initial ECG picked up some abnormalities so I was asked to wait and was then given an echocardiogram. I was seen by the consultant and told that my echocardiogram had picked up that I had mild aortic regurgitation

The second chance at life has made me appreciate how delicate life really is…by Emma Green

Whilst in hospital, I was diagnosed with Long QT Syndrome, a rare genetic heart condition that I had never heard of. Very few people are affected by my type of Long QT Syndrome and like the minority of people who also suffer with this, I have learned to adapt and live with this condition, making the most of the path that I have been given.

Coming across CRY has been the best thing after such an overwhelming period! by Kaitlin Lawrence

My name is Kaitlin Lawrence – I was an elite netball athlete, playing in the Scotland international senior squad for the past 3 seasons, training with the Scottish Commonwealth Games squad and World Cup squad in 2022 and 2023. I was a squad player for Surrey Storm, an ex-professional team in the Netball Superleague (NSL […]

Everyone should have a choice to get screened! by Harry Trowbridge

In April 2019, at just 15 years old and in my GCSE year, my life took an unexpected turn. I started experiencing a series of unexplained symptoms that left both me and the doctors puzzled. The symptoms, which seemed random and unrelated, included skin lesions on my legs and feet, severe muscle pain in my lower limbs, and at times, an inability to walk.

Amazing things are possible! by Thomas Morris

Our world fell apart 3 years ago when three of us Morris gang (Thomas, Xander and Jude) were diagnosed with a genetic critical heart condition called LQTS. 

Having never had major health issues before, to being told I was very lucky to be alive certainly changed my perspective on life.

You never think this is going to happen to someone young…by Megan Turner

Dec 2021 was a scary time for me and my family. I gave birth to my beautiful baby boy on the 11th and on the 17th, I had a sudden cardiac arrest, I got shocked 3-4 times, but my heart just wouldn’t settle. I died for a good 40 minutes but I wasn’t giving up! They put me in a

‘Heart issues don’t mean your life is over’ by Lewis Nicholson

This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI technician having a good eye, I am still here. In 2012 I was 18 years old and despite having an extremely active childhood including playing Rugby 6 days a week and through all months of the

My WPW story by Kathleen Dymond

My journey starts in my early teens when I became aware of my heart pounding in my chest, my heart racing, my throat constricting like hands that had wrapped themselves like a tight vine around my neck. I would feel faint like I would collapse and unable to catch my breath. It felt like I was going to suddenly die.

I have a heart condition but it’s not the end of the world!-by Gem O’Reilly

Since being diagnosed with my heart condition at 16 years old, I’ve been trying to understand my body, to understand my limitations and capabilities.  That has stemmed into my life in many ways, particularly when it comes to challenging my body and perceptions of what makes a healthy lifestyle.  It has led to me running long distance in a way