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Ben’s big daft run for Cardiac Risk in the Young

Last year (2024) I was diagnosed with a heart arrythmia that required two procedures to fix over the course of about 10 months. Prior to this I was fit and healthy and had never had any real signs that I had any issues with my heart. Needless to say, that this really sucked. The procedures […]

The rhythm of her heart – raising money in aid of CRY

I chose the title ‘The Rhythm of her Heart’ because that was the first song I wrote when I was diagnosed with my heart condition, Long QT Syndrome, at 16 years old. Being a teenager and diagnosed with a life threatening heart condition is not something one can process easily. I used music to process the shock, fear and anxiety I suddenly felt.

Everyone should have a choice to get screened! by Harry Trowbridge

In April 2019, at just 15 years old and in my GCSE year, my life took an unexpected turn. I started experiencing a series of unexplained symptoms that left both me and the doctors puzzled. The symptoms, which seemed random and unrelated, included skin lesions on my legs and feet, severe muscle pain in my lower limbs, and at times, an inability to walk.

Amazing things are possible! by Thomas Morris

Our world fell apart 3 years ago when three of us Morris gang (Thomas, Xander and Jude) were diagnosed with a genetic critical heart condition called LQTS. 

Having never had major health issues before, to being told I was very lucky to be alive certainly changed my perspective on life.

‘Heart issues don’t mean your life is over’ by Lewis Nicholson

This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI technician having a good eye, I am still here. In 2012 I was 18 years old and despite having an extremely active childhood including playing Rugby 6 days a week and through all months of the

My WPW story by Kathleen Dymond

My journey starts in my early teens when I became aware of my heart pounding in my chest, my heart racing, my throat constricting like hands that had wrapped themselves like a tight vine around my neck. I would feel faint like I would collapse and unable to catch my breath. It felt like I was going to suddenly die.