Currently myheart holds meetings twice a year in a central location for young people, between 18 and 35, who have suddenly been diagnosed with a life threatening heart condition. Anybody with a cardiac condition between the ages of 18 and 35 can come to the meetings if they:
Given the complexity of some conditions, we recognise that there will always be a need to consider some cases on an individual basis. Some places are also reserved for individuals between 36 and 39.
Young people can gain support through meetings and talking to others in a similar situation, hearing the different ways they have coped and discussing any issues that have arisen since their diagnosis.
Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. It does not matter how long ago you first received your diagnosis or whether you are undergoing any sort of treatment at the moment.
There is also a Q&A session with a consultant cardiologist, who specialises in dealing with young people diagnosed with one of these complicated conditions. CRY will also cover reasonable travelling expenses on submission of receipts after the event. Unfortunately CRY is unable to refund any other expenses, such as accommodation if you stay in London to attend the event.
If you are interested in attending or would like more information about CRY’s myheart meetings please call CRY’s myheart coordinator on 01737 363 222 or email myheart@c-r-y.org.uk.
Whilst the myheart meetings are exclusively for young people aged 18-35 (with some places reserved for individuals between 36-39) living with a cardiac condition, we have a Facebook group which can be joined by anyone over the age of 18 who has suddenly been diagnosed with a cardiac condition. You can find more information about this at: https://www.myheart.org.uk/facebook-support-registration-form/
