Members Stories – Long QT syndrome

Emmerson Hird

On Wednesday 6th June 2012 my 17 year old nephew Emmerson Hird survived a cardiac arrest. Emmerson had been playing upstairs on his X-box with

Jessica Goddard

Living with long QT syndrome Jessica Jane Goddard was born on the 27th July 2007. She was 3 years old when in May 2010 we

Rebekah Goddard

Living with long QT syndrome Even at the age of nine the signs were there, but no one realised what they meant. I recall going

Antony Eames

Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting

Louise Dee

Living with long QT syndrome Hi, my name is Louise. It all started in 1990 when I was 8 yrs old. I woke up hearing

Lucy Patey

Living With long QT syndrome I have always been a fit and active person, participating in many sporting activities – two of which were hockey

Jonny Goode

Living with long QT syndrome I love Sport! Any kind of sport and ever since I remember I have spent most of my spare time