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  • Medical Information
    • Conditions
    • Lifestyle advice
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    • FAQs
      • FAQs about ICDs
      • FAQ’s about CRY’s Research
  • Support
    • Online Support
    • Literature
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  • Members Stories
    • Members Stories – Conditions
    • Members Stories – Investigations
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    • Upload your own story
  • Awareness
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Members stories – Wolff-Parkinson-White syndrome

My life changed without warning! by Rebecca Travis

Last year I was 25 years old, healthy, fit, and with no family history of heart disease when my life changed without warning. Since 2023,

24/07/2025 No Comments

Never the Same Man by Richard Moore

Ask how I’m doing, do the pills go down ok?Somedays I’ll say I’m fine, just to make you go away. ‘If I open my eyes

17/06/2025 No Comments

Lagan Valley AC raise vital funds for CRY

The charity that helped to save the life of one of its young athletes through its screening programme June 2025 17-year-old, Scott Owen, presented a

06/06/2025 No Comments

Ben’s big daft run for Cardiac Risk in the Young

Last year (2024) I was diagnosed with a heart arrythmia that required two procedures to fix over the course of about 10 months. Prior to

22/05/2025 No Comments

The rhythm of her heart – raising money in aid of CRY

I chose the title ‘The Rhythm of her Heart’ because that was the first song I wrote when I was diagnosed with my heart condition, Long QT Syndrome, at 16 years old. Being a teenager and diagnosed with a life threatening heart condition is not something one can process easily. I used music to process the shock, fear and anxiety I suddenly felt.

08/05/2025 No Comments

I thought I would be in and out in 10 mins after having an ECG but… by Laura Harris

My initial ECG picked up some abnormalities so I was asked to wait and was then given an echocardiogram. I was seen by the consultant and told that my echocardiogram had picked up that I had mild aortic regurgitation

24/02/2025 No Comments

The second chance at life has made me appreciate how delicate life really is…by Emma Green

Whilst in hospital, I was diagnosed with Long QT Syndrome, a rare genetic heart condition that I had never heard of. Very few people are affected by my type of Long QT Syndrome and like the minority of people who also suffer with this, I have learned to adapt and live with this condition, making the most of the path that I have been given.

07/02/2025 No Comments

Coming across CRY has been the best thing after such an overwhelming period! by Kaitlin Lawrence

My name is Kaitlin Lawrence – I was an elite netball athlete, playing in the Scotland international senior squad for the past 3 seasons, training

04/02/2025 No Comments

Everyone should have a choice to get screened! by Harry Trowbridge

In April 2019, at just 15 years old and in my GCSE year, my life took an unexpected turn. I started experiencing a series of unexplained symptoms that left both me and the doctors puzzled. The symptoms, which seemed random and unrelated, included skin lesions on my legs and feet, severe muscle pain in my lower limbs, and at times, an inability to walk.

28/01/2025 No Comments

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