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  • Medical Information
    • Conditions
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    • FAQs
      • FAQs about ICDs
      • FAQ’s about CRY’s Research
  • Support
    • Online Support
    • Literature
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  • Members Stories
    • Members Stories – Conditions
    • Members Stories – Investigations
    • Members Stories – Treatments
    • Upload your own story
  • Awareness
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Nat Jenkins

Antony Eames

Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting at 4 years old. From then on I passed out regularly. Sometimes I passed out several times a day. During this time I was not allowed to do any school sport or go out in

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30/03/2011 No Comments

Louise Dee

Living with long QT syndrome Hi, my name is Louise. It all started in 1990 when I was 8 yrs old. I woke up hearing an alarm clock and realised it was my mother’s for work, so I got out of bed and went to turn the alarm off. When I went into her bedroom I turned the alarm off

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30/03/2011 No Comments

Stacy

Living with Wolff Parkinson White syndrome Hi, my name is Stacy and I am 19 years old. I was a very healthy child and was always very active and played netball every week. I remember having moments throughout my childhood where I would feel very odd and feel lightheaded and spaced out but we thought nothing of it. In October

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25/03/2011 No Comments

Jonny Goode

Living with long QT syndrome I love Sport! Any kind of sport and ever since I remember I have spent most of my spare time either hitting a ball, pedalling a bike or running around somewhere. It came as a great shock to me when I was diagnosed with long QT syndrome at the age of 23. The way I

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25/03/2011 No Comments

Living with long QT syndrome – Hayley Brown

Living with long QT syndrome I was 19 years old and had just failed my second driving test when my first and only attack happened. I ran through the garden and into the house where my mum was waiting nervously. I told her that I had failed and then went on to tell her I didn’t feel very well, but

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25/03/2011 No Comments

Living with hypertrophic cardiomyopathy – Fraser Thomas

Living with hypertrophic cardiomyopathy I am one of the few lucky parents as my son, Fraser, survived a full cardiac arrest while playing football last year. He had no previous symptoms or illness and was saved thanks to two medical students who happened to be playing football that day and also a mobile defibrillator that had recently been acquired by

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25/03/2011 No Comments

Living with right ventricular outflow tract ventricular tachycardia (RVOT-VT) – Julia Hubbard

Living with right ventricular outflow tract ventricular tachycardia (RVOT-VT) I have represented Great Britain in Bobsleigh since 2006 and In October 2007 I crashed in a race and sustained fractured vertebrae and tore all the ligaments in my thoracic spine. I was out of the sport for the rest of the season while I recovered and had rehab. In April

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25/03/2011 No Comments
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