Brugada Syndrome Diaries

When thinking about fundraising for a charity, CRY was an obvious choice for me as they’ve done so much for my family and I when we were younger. When I was just six years old and my Brother hadn’t even turned two yet we lost our Dad, he was just 34 years old himself. This […]

Rebekah Goddard

Living with long QT syndrome Even at the age of nine the signs were there, but no one realised what they meant. I recall going home from school near to tears as I had, had a ‘panic attack’ in the school assembly hall…. yet again. My heart pounded and I felt sick as well as […]

Catherine McGough

Living with endocardial fibroelastosis My name is Catherine and I thought I would tell my story so that maybe it will give others a bit of hope. I am now 24 yrs old. When I was 7 weeks old back in December 1979, I was rushed into the Leeds General Infirmary having heart failure. After […]

Rob Jackson

Living with arrhythmogenic right ventricular cardiomyopathy (ARVC) I am a 31 year old Sergeant in the Army Air Corps and until recently was a Lynx Helicopter pilot and aircraft commander operating in Northern Ireland. I joined the Army at 18 and have spent the past 12 years living an active, healthy lifestyle as a soldier. […]

Ellie Brogan

Living with Wolff Parkinson White syndrome My name is Ellie Brogan, I am 15 years old and suffer from Wolff Parkinson White syndrome (WPW). I really want to raise money for your charity and thought I would start by telling you my story and the reason why I want to raise money. When I was 7 years old, […]

Claire Herridge

Living with left ventricular wall abnormality A year and a half ago, when I was 34, I was out running when I experienced heart palpitations, chest pain and shortness of breath. I was taken by ambulance to Southampton General Hospital. This was a shock to me as I am a PE teacher and have always […]

Steve Jackson

Having a myxoma diagnosed A married father with two young children, recently promoted to Detective Inspector in The City of London Police and having been appointed onto the City Security Magazine editorial committee, life was going pretty well for Steve Jackson. In the summer of 2008 my world was turned upside down. I started to […]

Julia Hubbard

Living with right ventricular outflow tract ventricular tachycardia (RVOT-VT) I have represented Great Britain in Bobsleigh since 2006 and In October 2007 I crashed in a race and sustained fractured vertebrae and tore all the ligaments in my thoracic spine. I was out of the sport for the rest of the season while I recovered […]

Russell Goodman

Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition A healthy way to start the weekend, get up Saturday morning and go for a run. This was something my fiancée Charlotte and I enjoy regularly, sick this one however was very different. After being out for just over an hour running the streets […]

Echocardiogram (ECHO)

This test uses ultrasound waves to look at the structure of the heart. It is useful for people whose ECG shows changes that could be caused either by a channelopathy or by uninherited heart disease that has damaged the heart. An echocardiogram can also detect inheritable conditions such as cardiomyopathy and mitral valve prolapse. The […]