My life has changed forever but it will not define me! Blog by Nick Cassidy

29th May 2025 will always be known to me as the day that changed my life forever. Prior to this date I was your normal 28-year-old who loved sport and keeping fit. I had played football for over 20 years within an academy as a child and then both professionally and semi-professional in later years. Football […]
The Psychological impact of Inherited Cardiac Conditions in Young People

Dr Vicky Kelly is a Consultant Clinical Psychologist and Service Lead for the Barts Heart and Thorax Centre Psychological Services at St Bartholomew’s Hospital. She set up this service in 2017, after working in paediatric cardiac psychology services at Great Ormond Street Hospital from 2009. Prior to this she worked in Paediatric Palliative Care, Cystic […]
The second chance at life has made me appreciate how delicate life really is…by Emma Green

Whilst in hospital, I was diagnosed with Long QT Syndrome, a rare genetic heart condition that I had never heard of. Very few people are affected by my type of Long QT Syndrome and like the minority of people who also suffer with this, I have learned to adapt and live with this condition, making the most of the path that I have been given.
myheart hard copy newsletter-2023

Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
624 Reasons Why by Joe McEwan

My name is Joe, and I suppose you could say I’m your fairly average 23-year-old man. I graduated from university with a law degree in 2022, have played sport pretty much my whole life and I love travel, playing guitar and art. I also had a sudden cardiac arrest at the age of 22.
How research can lead to review and potential reform for UK screening policy

Interview with Dr Harshil Dhutia (Consultant cardiologist, Glenfield Hospital Leicester & Clinical Lead for the Inherited Cardiac Conditions service, University Hospitals of Leicester):
CRY’s Research Fellows – both past and present – are playing an increasing role in helping to inform and influence decision makers, based on their highly acclaimed, published research papers and the findings they present at UK and international conferences.
It’s Scarier Not to Die by Jamie Poole

For the first time in 12 years, I experienced my first incident of an inappropriate shock. Not just one, but five, one after the other. Bang. Bang. Bang. Bang. Bang. To say it was painful would be a gross understatement. It was a combination of the most painful experience of my life, mixed with the most terrifying. Not only was
We thought something was wrong with ECG leads or monitor but… Blog by Jess-Lee Welch

I was in my final year of uni studying Sport and Exercise Science and we were in the lab doing ECGs on one another. When my lecturer (Dr David Oxborough) came to check on mine, he thought something was wrong with the monitor or leads. Long story short, the monitor wasn’t broken. After staying behind and completing an Echocardiogram on
My heart stopped with no warning at all! by Jade Hobman

Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday as I skateboard everywhere. Around 5 pm, when I was skating down the road, my heart just stopped with no warning at all! I remember waking up in hospital thinking, “why am I here, did
I thought I had a flu but then I suffered a cardiac arrest! by Jake Fordham

On Tuesday the 21st of February I was sent home from work a little early as I was feeling unwell. My colleague had only recently returned to work after having the flu so I assumed I was coming down with something similar. My manager asked me to call in the next day if I was still feeling unwell but hoped