Do the CRY Cardiologists and research team see many people with Brugada syndrome and how many need not have an ICD implanted ?
CRY’s myheart cardiologist, Dr Michael Papadakis, answers this question in the video below.
After a close friend of ours, Tim Butt, suffered a near-fatal cardiac arrest we decided it’d be a good idea to go for a run. Setting off from the Liberty Stadium in Swansea, we spent two weeks averaging fifteen miles per day across South Wales and through England all the way to London before then […]
June will mark 4 years since I first discovered something wasn’t right. I was playing pool at the time in a competition match for prize money. There was a lot of pressure and my body could feel it. I was winning 1-0 and all of a sudden I started to go dizzy so I decided […]
The 9th December 2016 isn’t a key date for me. On that day, I was with my Mum, Dad and younger Sister, who were finishing up from undergoing their Flecanide Challenges…which all fortunately came back clear, which was a huge relief. At 18:30 I received a phone call from my Cardiologist, who went on to […]
On Tuesday the 21st of February I was sent home from work a little early as I was feeling unwell. My colleague had only recently returned to work after having the flu so I assumed I was coming down with something similar. My manager asked me to call in the next day if I was […]
I have no diagnosis for my SCA yet. It happened in July this year and I have had all the tests but the cause is still unknown, I have MVP but they have said that is unrelated. I am 34 And was at my sister’s wedding as maid of honour. As I walked down the aisle, […]
My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called […]
Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a heart condition sucks. I mean, it really sucks. It’s a massive thing to have to comprehend; that the core element of us, the heart, doesn’t […]
Watch myheart member, Joseph Tanner, talk about his experience of getting an ICD implanted.
Watch myheart member, Tim Butt, talk about an electrophysiological procedure he has recently had.