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Due to the ongoing COVID-19 pandemic, the CRY Conference was moved online again for 2021. On October 14 and 15, the conference was hosted in partnership by CRY and the European Association of Preventive Cardiology (EAPC). We were thrilled to welcome leading experts in cardiology from around the globe for presentations, discussion of case-based scenarios, […]
A myheart members’ video meeting was held on Thursday, 17th March, 2022. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed […]
It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my father found me unresponsive on the bathroom floor, before resuscitating me – I later found out that 95% of females who suffer their first major ‘event’ do not survive. My […]
Do the CRY Cardiologists and research team see many people with Brugada syndrome and how many need not have an ICD implanted ?
CRY’s myheart cardiologist, Dr Michael Papadakis, answers this question in the video below.
After a close friend of ours, Tim Butt, suffered a near-fatal cardiac arrest we decided it’d be a good idea to go for a run. Setting off from the Liberty Stadium in Swansea, we spent two weeks averaging fifteen miles per day across South Wales and through England all the way to London before then […]
June will mark 4 years since I first discovered something wasn’t right. I was playing pool at the time in a competition match for prize money. There was a lot of pressure and my body could feel it. I was winning 1-0 and all of a sudden I started to go dizzy so I decided […]
The 9th December 2016 isn’t a key date for me. On that day, I was with my Mum, Dad and younger Sister, who were finishing up from undergoing their Flecanide Challenges…which all fortunately came back clear, which was a huge relief. At 18:30 I received a phone call from my Cardiologist, who went on to […]
On Tuesday the 21st of February I was sent home from work a little early as I was feeling unwell. My colleague had only recently returned to work after having the flu so I assumed I was coming down with something similar. My manager asked me to call in the next day if I was […]
I have no diagnosis for my SCA yet. It happened in July this year and I have had all the tests but the cause is still unknown, I have MVP but they have said that is unrelated. I am 34 And was at my sister’s wedding as maid of honour. As I walked down the aisle, […]