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myheart Newsletter 2018

A digital copy of the myheart Newsletter 2018 is now available to read here on Issuu. Catch up on the latest news and updates, research news, myheart meetings and read #myheartmystory’s from members.

CredibleMeds for members with Long QT

Members with long QT syndrome may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: On January 14th, AZCERT added the anticancer drug Glasdegib (Daurismo) to the Possible Risk of torsades de pointes (TdP) list because we

My journey with ALCAPA – My Story by Serena Freeman

My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone on my lunch break when I had a sudden cardiac arrest. The people around me called for an ambulance and one of the men was then guided through CPR and without any training performed it

MyHeart enewsletter December 2018 – February 2019

In this e-newsletter you can find information about: CRY Heart of London Bridges WalkUpcoming myheart meetingHeart Month (February)Idiopathic Polymorphic Ventricular Tachycardia, by Hollie BellNHS England Congenital Heart Disease Peer Review Visit ProgrammePrivate Facebook Group Read the full newsletter and subscribe here

CRY Heart of London Bridges Walk 2019 – 23rd June

Registration is open and we have supporters signing up everyday! Join CRY and the 100 people already signed up for a chance to connect and remember. New for 2019:New venue – This year’s event will be starting and finishing in Southwark Park, near the Band Stand and is approximately 5.5 miles long. The new venue enables us to start and finish at the

Idiopathic Polymorphic Ventricular Tachycardia – My Story by Hollie Bell

Since having my little boy 3 years ago this month I haven’t really felt well and have been suffering palpitations, dizzy spells and feeling breathless. My GP just kept putting it down to post natal depression and anxiety. I would only get the funny palpitations about 10 days before my period was due, and then they would stop once it

myheart e-newsletter October – November 2018

In this e-newsletter you can find information about: Fundraising and Raising Awareness by Members of the myheart network New videos filmed with myheart Cardiologist Dr Michael Papadakis Credible Meds update Annual myheart newsletter Private myheart Facebook group Read the full enews here. To register to receive the myheart e-newsletter to be kept up to date with any news or information, please subscribe at here