My condition made me realise how precious life is!

June will mark 4 years since I first discovered something wasn’t right. I was playing pool at the time in a competition match for prize money. There was a lot of pressure and my body could feel it. I was winning 1-0 and all of a sudden I started to go dizzy so I decided to have a drink and
The beginning of surreal chain of events! by Adam Brown

It was a big day for me, it was the day I played my money match for a few thousand pound prize. It’s safe to say I felt the pressure. After going 1-0 up in a race to 15 games, things started to turn ugly. Firstly, I started to get confused about what I would do normally in simple situations
myheart hard copy newsletter-2017

Read my heart hard copy newsletter here.
March-April myheart enewsletter

Thank you to all who helped raise awareness of Cardiac Risk in the Young (CRY) and myheart during February for Heart Month. The hard copy newsletter featuring last year’s activities will be mailed to you shortly. Please find in this newsletter information on: CRY Heart of London Bridges Walk 2018 – registration is now open! Fundraising and Raising Awareness by Members of
Brugada Syndrome Diaries

When thinking about fundraising for a charity, CRY was an obvious choice for me as they’ve done so much for my family and I when we were younger. When I was just six years old and my Brother hadn’t even turned two yet we lost our Dad, he was just 34 years old himself. This was back in 2003 when
New DVLA Guidelines for individuals with cardiac conditions

We have been told there has been an update to DVLA rules from January 2018. We are not sure if you are aware or have seen this so just wanted to share this with you. This may not be relevant to some of you so please check their website according your circumstances. They have included specific sections on LQTS and
Nikki and Zak Selfi’s Partylite candle party for CRY

My son and I held a Partylite Candle party on the 22nd February 2018 in our coffee shop, managing to raise £310 for CRY, an amount we are thrilled with! Nikki Selfi
My meeting with Caroline Lucas MP by Joseph Tanner

On Friday 23rd February, I had the pleasure of meeting Brighton Pavilion MP, Caroline Lucas. The meeting was set up by Caroline’s office because she was unable to attend Cardiac Risk in the Young’s Parliamentary Reception in November and she wanted to learn more about the work CRY do. The previous year, Caroline signed a C-R-Y pledge to support a National Strategy
myheart enewsletter-January 2018. What’s new for 2018?

Thank you to all members who helped raise awareness of Cardiac Risk in the Young (CRY) and myheart in 2017. Last year 73 new members joined us. The hard copy newsletter featuring last year’s activities will be mailed to you shortly. Please find in this newsletter information on: New private Facebook group for myheart Heart Month – February myheart cardiologist to film new