Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: December 12, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: AZCERT’s Scientific Review Committee has found
Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young
Friday October 20th saw the welcome return of CRY’s Annual Medical Conference to an ‘in person’ event (following three years of remote access) – with a new venue for 2023, The Curve Lecture Theatre at the heart of St George’s, University of London, fittingly the home of CRY’s internationally acclaimed research programme and the CRY Centre of Cardiac Pathology (CCCP).
Focus group for patients with DCM and ARVC
On the 29th of September, a focus group for patients with dilated and arrhythmogenic cardiomyopathy has been organized by CRY and by Dr Gherardo Finocchiaro, Consultant Cardiologist at St George’s Hospital and Honorary Senior Lecturer and St George’s University of London. Dr Finocchiaro and his team at St George’s Hospital are aiming to organize a randomised clinical trial focused on moderate
myheart enews-Jun to Sept 2023
Dear myheart members,In this e-newsletter you can find information about: The impact of exercise and physical activity on young people with a heart condition CRY Research Fellow, Dr Raghav Bhatia reflects on his recent research award myheart members, Cara Bunn, Megan Turner and Lewis Nicholson’s stories RSM’s Medicine and Me Conference Online myheart meeting Volunteering for CRY myheart hard copy newsletter Update
Medicine and Me Conference
https://www.youtube.com/embed/-CwZTp6mnhc Talks included*: 0:00 to 5:30 – Welcome and introduction – Dr Steven Cox1:12:00 to 1:27:00 – How can we identify young people with cardiac conditions – Professor Sanjay Sharma1:27:00 to 1:46:00 – How do we risk stratify young people identified with cardiac conditions – Professor Michael Papadakis1:46:00 to 2:02:00– How often should patients with cardiac conditions be tested/re-tested? – Professor Sanjay Sharma2:02:00 to 2:25:00 – How can patients
If cardiac screening was available to me, I wouldn’t have had to go through this trauma by Cara Bunn
It was October 2021 – I’d recently just come back off holiday abroad for my 21st birthday and I wasn’t feeling myself at all. I had developed a cough but thinking it was due to me coming back to the colder weather I didn’t think twice about it. One morning before work while getting ready I actually fainted but it
myheart hard copy newsletter-2022
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
You never think this is going to happen to someone young…by Megan Turner
Dec 2021 was a scary time for me and my family. I gave birth to my beautiful baby boy on the 11th and on the 17th, I had a sudden cardiac arrest, I got shocked 3-4 times, but my heart just wouldn’t settle. I died for a good 40 minutes but I wasn’t giving up! They put me in a
Online myheart meeting with Dr Sabiha Gati-Saturday, 4th November, 2023
A myheart members’ video meeting was held on Saturday, 4th November, 2023. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed or whether you are undergoing
“Best of the Best” – CRY Research Fellow reflects on his recent accolade at international cardiac conference
CRY’s Research Fellows – both past and present – spend much of their time writing and submitting manuscripts based on their projects as well as travelling to UK and international conferences to present their key findings and to lead discussions which help to further the understanding of the causes of young sudden cardiac death (YSCD) Dr Raghav Bhatia And, as
