I’ve just been diagnosed with an inherited cardiac condition. Who else in my family needs to be screened?
ICD Patient and Family Support Day, UCL Institute for Child Health
4th February, 2017 Cardiac Risk in the Young (CRY) was very kindly invited to hold a stand at ‘GOSH ICD Family day’, an annual event, organised by The Great Ormond Street Hospital at Institute of Child Health in London on Saturday, 4th February, 2017. Kanika Bhateja, CRY’s myheart coordinator attended the event. The event was attended by young pacemaker and
Feedback about myheart meetings
Please read what our myheart members have to say about the meetings below: When I was first told that I needed an ICD implanted I was devastated and didn’t have a clue what to expect from the future. After googling (a lot) I came across CRY and gave them a call. I was signed up for the myheart meeting which
Spire Radio Derbyshire Interview with Annamarie Vickers-Skidmore
Poetess and myheart member, Annamarie Vickers-Skidmore spoke to Spire Radio, Derbyshire about her pacemaker at just four and a half and her subsequent fundraising for CRY through her poetry book. Listen here
Running With The Brakes On
myheart member, Andy Owen’s brother has written a blog about his probable diagnosis of ARVC which can be read here.
BBC Radio Bristol interview with Isabelle Peters
BBC Radio Bristol – 14th December 2016 Classical Soprano Isabelle Peters spoke to Laura Rawlings on BBC Radio Bristol about her cardiac arrest at just 21 and her subsequent fundraising for CRY. Listen here (02:09:50)
A brave night walking on fire for heart charity
myheart member, Chris Smith and his mum, held a Firewalk on the 10th September at The Lord Nelson, Chorley. 17 people took part including Chris and his mum, it was a great evening. Everyone that took part enjoyed the night. A raffle supported by the Heartfelt members was also held. A fantastic total of £2155 was raised for CRY. For a detailed write-up
Girl, 17, fitted with life-saving pacemaker after school screening spots major heart defect
The Sun – 8th October 2016 A student told she had a major heart defect after attending a school screening has been fitted with a life-saving pacemaker – at the age of just 17. Read more
myheart e-newsletter Jun-Aug
Dear myheart members Please find in this newsletter: Bridges Walk 2016 Upcoming myheart meeting CRY Cake Bake and National Awareness Week Stand at the Congenital Heart Disease Conference Activity on the myheart website Feedback Social Media Read the full newsletter here.
Stand at the Congenital Heart Disease Conference 2016
This established annual course runs for nurses and Allied Health Practitioners working with infants, children and young people who have congenital heart disease and related cardiac conditions. The course is run collaboratively by the Practice Educators and Specialist Staff of the London Congenital Heart Centres and attracts attendees from Cardiac Centres in the UK, Ireland, Europe and further afield. The
