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David Hillson

Living with suspected arrhythmogenic right ventricular cardiomyopathy (ARVC) In February 2008 I was out running with a friend. It was bitterly cold and I had not run over the Christmas period so this run was my attempt to ‘get back into it’! I had always been fairly healthy, played football all my life (and rugby at University) but at the

Lucy Patey

Living With long QT syndrome I have always been a fit and active person, participating in many sporting activities – two of which were hockey and horse riding, family passions that I inherited. During my teenage years I competed at top level both on horseback and on the hockey field. Looking back, I was given so many warning signals –

Brother Kevin Leahy

Sudden cardiac arrest resulting from amyloidosis I am a Catholic seminarian studying to be a Roman Catholic Priest. At the moment of the cardiac arrest, I was studying in Rome where one of our seminaries is located. On June 1 2008 on a hot summer afternoon I was jogging towards our soccer field to play. I was jogging with a

Ellie Brogan

Living with Wolff Parkinson White syndrome My name is Ellie Brogan, I am 15 years old and suffer from Wolff Parkinson White syndrome (WPW). I really want to raise money for your charity and thought I would start by telling you my story and the reason why I want to raise money. When I was 7 years old, I was experiencing heart palpitations

Lyndsay Morton

Living with Wolff-Parkinson-White syndrome When I was 19 I was woken by a paramedic at 3am one morning. The paramedic had been called by my partner because I had stopped breathing and started fitting in my sleep. Subsequently I was told that I was “stressed and its nothing to worry about”! I kept getting severe palpitations – often out of

Claire Herridge

Living with left ventricular wall abnormality A year and a half ago, when I was 34, I was out running when I experienced heart palpitations, chest pain and shortness of breath. I was taken by ambulance to Southampton General Hospital. This was a shock to me as I am a PE teacher and have always lead a reasonably healthy and

Steve Jackson

Having a myxoma diagnosed A married father with two young children, recently promoted to Detective Inspector in The City of London Police and having been appointed onto the City Security Magazine editorial committee, life was going pretty well for Steve Jackson. In the summer of 2008 my world was turned upside down. I started to expereince breathlessness and chest pains,

Scott Fleming

Living with Wolff Parkinson White syndrome I was 27 when I collapsed whilst playing Sunday league football. Little did I know I had been living my life with Wolff-Parkinson-White syndrome (WPW). I survived this collapse and resulting coma and awoke to find the doctors still never knew what was wrong with me. After a few tests they discovered what it

Stacy

Living with Wolff Parkinson White syndrome Hi, my name is Stacy and I am 19 years old. I was a very healthy child and was always very active and played netball every week. I remember having moments throughout my childhood where I would feel very odd and feel lightheaded and spaced out but we thought nothing of it. In October

Jonny Goode

Living with long QT syndrome I love Sport! Any kind of sport and ever since I remember I have spent most of my spare time either hitting a ball, pedalling a bike or running around somewhere. It came as a great shock to me when I was diagnosed with long QT syndrome at the age of 23. The way I