Ben’s big daft run for Cardiac Risk in the Young
Last year (2024) I was diagnosed with a heart arrythmia that required two procedures to fix over the course of about 10 months. Prior to this I was fit and healthy and had never had any real signs that I had any issues with my heart. Needless to say, that this really sucked. The procedures […]
The rhythm of her heart – raising money in aid of CRY
I chose the title ‘The Rhythm of her Heart’ because that was the first song I wrote when I was diagnosed with my heart condition, Long QT Syndrome, at 16 years old. Being a teenager and diagnosed with a life threatening heart condition is not something one can process easily. I used music to process the shock, fear and anxiety I suddenly felt.
Research Opportunity: Exploring the Impact of an Inherited Cardiac Condition on Individuals and their Families
Katrina Martindale from the University of Surrey, is leading a research project ‘Exploring the Psychological Impact on Individuals and their Families Following a Diagnosis of an Inherited Cardiac Condition’. Watch Katrina’s brief about the research below. If you would like to take part in this research or if you have any questions about this, please […]
Spring National myheart meeting – Saturday, 29th March, 2025
A myheart members’ meeting is planned at Friends House, 173-177 Euston Road, London NW1 2BJ, between 10am-12pm on Saturday 29th March 2025.
There will be a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members can ask questions they have about their condition, the exercise/s they can do or any other cardiac concerns they might have.
The Psychological impact of Inherited Cardiac Conditions in Young People
Dr Vicky Kelly is a Consultant Clinical Psychologist and Service Lead for the Barts Heart and Thorax Centre Psychological Services at St Bartholomew’s Hospital. She set up this service in 2017, after working in paediatric cardiac psychology services at Great Ormond Street Hospital from 2009. Prior to this she worked in Paediatric Palliative Care, Cystic […]
My family’s story by Donna Aldred
So I am sitting on a sun lounger in Gran Canaria soaking up the December sun while my husband & 2 sons play golf & I realise that I now understand what it feels like to be ‘truly blessed’.
Our family story revolves around our eldest son Ben, who suffered an out of hospital cardiac arrest in October 2022 whilst visiting family in Perth, Australia.
The second chance at life has made me appreciate how delicate life really is…by Emma Green
Whilst in hospital, I was diagnosed with Long QT Syndrome, a rare genetic heart condition that I had never heard of. Very few people are affected by my type of Long QT Syndrome and like the minority of people who also suffer with this, I have learned to adapt and live with this condition, making the most of the path that I have been given.
Coming across CRY has been the best thing after such an overwhelming period! by Kaitlin Lawrence
My name is Kaitlin Lawrence – I was an elite netball athlete, playing in the Scotland international senior squad for the past 3 seasons, training with the Scottish Commonwealth Games squad and World Cup squad in 2022 and 2023. I was a squad player for Surrey Storm, an ex-professional team in the Netball Superleague (NSL […]
Everyone should have a choice to get screened! by Harry Trowbridge
In April 2019, at just 15 years old and in my GCSE year, my life took an unexpected turn. I started experiencing a series of unexplained symptoms that left both me and the doctors puzzled. The symptoms, which seemed random and unrelated, included skin lesions on my legs and feet, severe muscle pain in my lower limbs, and at times, an inability to walk.
Amazing things are possible! by Thomas Morris
Our world fell apart 3 years ago when three of us Morris gang (Thomas, Xander and Jude) were diagnosed with a genetic critical heart condition called LQTS.
Having never had major health issues before, to being told I was very lucky to be alive certainly changed my perspective on life.
