Online myheart meeting with Dr Sabiha Gati-Saturday, 4th November, 2023
A myheart members’ video meeting was held on Saturday, 4th November, 2023. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed […]
“Best of the Best” – CRY Research Fellow reflects on his recent accolade at international cardiac conference
CRY’s Research Fellows – both past and present – spend much of their time writing and submitting manuscripts based on their projects as well as travelling to UK and international conferences to present their key findings and to lead discussions which help to further the understanding of the causes of young sudden cardiac death (YSCD) […]
‘Heart issues don’t mean your life is over’ by Lewis Nicholson
This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI technician having a good eye, I am still here. In 2012 I was 18 years old and despite having an extremely active childhood including playing Rugby 6 days a week and […]
Update from CredibleMeds
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. June 26, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: AZCERT’s Scientific Review Committee has found substantial evidence that Pacritinib (anticancer), Vernakalant (antiarrhythmic) and Fexinidazole (antiparasitic) are associated with […]
The impact of exercise and physical activity on young people living with a heart condition
The impact of exercise and physical activity on young people living with a heart condition is an issue that often comes up at myheart meetings or is discussed amongst our members. CRY’s cardiology experts are also commonly asked, “is it safe for me to exercise?’ and ‘how far can I push myself when training?’. As […]
CRY Medical Conference-2022
After a few successful years, the CRY Conference was held online for the third time in 2022. On October 20th and 21st, the conference was held in partnership with CRY and the European Association of Preventative Cardiology (EAPC). We were delighted to welcome leading experts in cardiology from around the world for presentations, discussion of […]
Why Do I Support CRY?
During Heart Month 2023, CRY launched ‘why do I support CRY?’. The campaign aimed to personify and tell the stories behind CRY. We asked our supporters to send in their reasons for supporting CRY so we could share across our social media what CRY means to so many. The campaign was met with hundreds of […]
National myheart meeting-20th May, 2023
A myheart members’ meeting was held at Friends House, in London on Saturday 20th May, 2023. The meeting involved a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members were free to ask any questions they had about their condition, the exercise/s they can do or any other cardiac concerns they […]
Update from Credible Meds
We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. February 21, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: AZCERT’s Scientific Review Committee has found substantial evidence that Macimorelin (used for diagnosis of growth hormone deficiency), Dexmedetomidine (sedative), Pralsetinib (Thyroid […]
PFO – Patent Foramen Ovale
What is a patent foramen ovale (PFO) and what causes it? A patent foramen ovale (or PFO for short) is a flap between the top 2 chambers of the heart which has not closed the way it should do at birth. During a baby’s development in the womb, this flap is fully open as a hole called […]