Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young Friday October 20th saw the welcome return of CRY’s Annual Medical Conference to an ‘in person’ event (following three years of remote access) – with a new venue for 2023, The Curve Lecture […]

Focus group for patients with DCM and ARVC

On the 29th of September, a focus group for patients with dilated and arrhythmogenic cardiomyopathy has been organized by CRY and by Dr Gherardo Finocchiaro, Consultant Cardiologist at St George’s Hospital and Honorary Senior Lecturer and St George’s University of London. Dr Finocchiaro and his team at St George’s Hospital are aiming to organize a randomised […]

myheart enews-Jun to Sept 2023

Dear myheart members, In this e-newsletter you can find information about: Read the full enews here. Subscribe to myheart enews here to receive latest myheart and CRY updates.

Medicine and Me Conference

Talks included*: 0:00 to 5:30 – Welcome and introduction – Dr Steven Cox1:12:00 to 1:27:00 – How can we identify young people with cardiac conditions – Professor Sanjay Sharma1:27:00 to 1:46:00 – How do we risk stratify young people identified with cardiac conditions – Professor Michael Papadakis1:46:00 to 2:02:00– How often should patients with cardiac conditions be tested/re-tested? – Professor Sanjay Sharma2:02:00 to […]

myheart hard copy newsletter-2022

Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.

Online myheart meeting with Dr Sabiha Gati-Saturday, 4th November, 2023

A myheart members’ video meeting was held on Saturday, 4th November, 2023.  Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful.  It does not matter how long ago you were diagnosed […]

‘Heart issues don’t mean your life is over’ by Lewis Nicholson

This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI technician having a good eye, I am still here. In 2012 I was 18 years old and despite having an extremely active childhood including playing Rugby 6 days a week and […]

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