Online myheart meeting with Dr Sabiha Gati-Saturday, 19th October, 2024
A myheart members’ video meeting is planned for Saturday, 19th October 2024 between 10am and 12pm. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long […]
myheart hard copy newsletter-2023
Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.
624 Reasons Why by Joe McEwan
My name is Joe, and I suppose you could say I’m your fairly average 23-year-old man. I graduated from university with a law degree in 2022, have played sport pretty much my whole life and I love travel, playing guitar and art. I also had a sudden cardiac arrest at the age of 22. September […]
Never Miss a Beat
By Gem O’Reilly It’s a funny thing being told you could potentially go into cardiac arrest for something you can’t necessarily see or feel. It’s a surreal, intangible experience and very scary. That’s what happened to me when I was 16. I was diagnosed with Long QT Syndrome, which basically means my heart struggles to […]
How research can lead to review and potential reform for UK screening policy
Interview with Dr Harshil Dhutia (Consultant cardiologist, Glenfield Hospital Leicester & Clinical Lead for the Inherited Cardiac Conditions service, University Hospitals of Leicester): CRY’s Research Fellows – both past and present – are playing an increasing role in helping to inform and influence decision makers, based on their highly acclaimed, published research papers and the […]
Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: April 29, 2024 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds […]
Empowering Hearts: Dr. Joyee Basu’s Groundbreaking Research Redefines Exercise Guidelines for Hypertrophic Cardiomyopathy Patients
CRY’s Research Fellows – both past and present – have an outstanding reputation of submitting and publishing papers, sharing and showcasing their projects with peers and key decision makers and presenting findings at UK and international conferences. The issue around the impact of exercise and physical activity on young people living with a heart condition […]
National myheart meeting-16th March,2024
A myheart members’ meeting was held at Friends House, 173-177 Euston Road, London NW1 2BJ, between 2pm-5pm on Saturday 16th March 2024. Please find the feedback form below for the meeting below. There was a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members asked questions they had about their condition, the […]
Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: December 12, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: […]
Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young Friday October 20th saw the welcome return of CRY’s Annual Medical Conference to an ‘in person’ event (following three years of remote access) – with a new venue for 2023, The Curve Lecture […]