Never the Same Man by Richard Moore
Ask how I’m doing, do the pills go down ok?Somedays I’ll say I’m fine, just to make you go away. ‘If I open my eyes what will I see?’ I opened my eyes and tried to focus. I saw curtains surrounding me and the bright white sheets of the bed. I realised the ‘beep……beep……beep’ was […]
CRY Cardiology Conference 2024
The CRY cardiology conference is an annual event which attracts speakers and delegates from around the globe, including many of the world’s leading experts on sports cardiology and young sudden cardiac diagnosis. The CRY conference draws together experts in the fields of sports cardiology, inherited cardiac diseases and sudden cardiac death in the young, who […]
Lagan Valley AC raise vital funds for CRY
The charity that helped to save the life of one of its young athletes through its screening programme June 2025 17-year-old, Scott Owen, presented a cheque for £2,000 as he shared his personal story about the benefits of heart screening in young people Lagan Valley AC has gone the extra mile, literally and figuratively, by […]
CRY Heart of London Bridges Walk 2025
CRY’s flagship event, the CRY Heart of London Bridges Walk, will be held on the 22nd of June 2025 at Southwark Park. If you would like to sign up, please follow this link to register: https://www.c-r-y.org.uk/heart-of-london-bridges-walk/ The walk, beginning at 11am, is approximately 6.5 miles long, starting and finishing in Southwark Park. In the afternoon, […]
Ben’s big daft run for Cardiac Risk in the Young
Last year (2024) I was diagnosed with a heart arrythmia that required two procedures to fix over the course of about 10 months. Prior to this I was fit and healthy and had never had any real signs that I had any issues with my heart. Needless to say, that this really sucked. The procedures […]
The rhythm of her heart – raising money in aid of CRY
I chose the title ‘The Rhythm of her Heart’ because that was the first song I wrote when I was diagnosed with my heart condition, Long QT Syndrome, at 16 years old. Being a teenager and diagnosed with a life threatening heart condition is not something one can process easily. I used music to process the shock, fear and anxiety I suddenly felt.
Research Opportunity: Exploring the Impact of an Inherited Cardiac Condition on Individuals and their Families
Katrina Martindale from the University of Surrey, is leading a research project ‘Exploring the Psychological Impact on Individuals and their Families Following a Diagnosis of an Inherited Cardiac Condition’. Watch Katrina’s brief about the research below. If you would like to take part in this research or if you have any questions about this, please […]
Spring National myheart meeting – Saturday, 29th March, 2025
A myheart members’ meeting is planned at Friends House, 173-177 Euston Road, London NW1 2BJ, between 10am-12pm on Saturday 29th March 2025.
There will be a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members can ask questions they have about their condition, the exercise/s they can do or any other cardiac concerns they might have.
The Psychological impact of Inherited Cardiac Conditions in Young People
Dr Vicky Kelly is a Consultant Clinical Psychologist and Service Lead for the Barts Heart and Thorax Centre Psychological Services at St Bartholomew’s Hospital. She set up this service in 2017, after working in paediatric cardiac psychology services at Great Ormond Street Hospital from 2009. Prior to this she worked in Paediatric Palliative Care, Cystic […]
My family’s story by Donna Aldred
So I am sitting on a sun lounger in Gran Canaria soaking up the December sun while my husband & 2 sons play golf & I realise that I now understand what it feels like to be ‘truly blessed’.
Our family story revolves around our eldest son Ben, who suffered an out of hospital cardiac arrest in October 2022 whilst visiting family in Perth, Australia.
