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Brugada and Self-Isolation

Monday 16th March I celebrated my 12th re-birthday, re-birthday is a term that all cardiac arrest survivors use to celebrate surviving a cardiac arrest. I didn’t really celebrate it this year, maybe ‘cause of this underlying cloud that was shadowing the world. This cloud, this virus COVID-19/ Coronavirus, we first heard about this virus whilst we were on holiday in

My heart stopped with no warning at all! by Jade Hobman

Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday as I skateboard everywhere. Around 5 pm, when I was skating down the road, my heart just stopped with no warning at all! I remember waking up in hospital thinking, “why am I here, did

Revisions to the CredibleMeds Lists-March 2020

Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: March 19, 2020 Re: Recent revisions to QTdrugs.org Lists Dear subscribers to CredibleMeds: Like you, we at CredibleMeds are adjusting to changes in

CRY Ambassador, Ben Coleman, getting tested by CRY

CRY is thrilled to have a growing group of Ambassadors. This position was introduced for people who have achieved recognition in their chosen field, who can raise awareness of CRY and share our key messages and information with their followers. This includes Ben Coleman, a professional squash player who represents England. Ben turned professional in 2009 and his career started

Interview with Consultant Cardiologist Sabiha Gati

Dr Sabiha Gati, how is it different working with a young population with cardiac conditions? A typical day’s work involves assessing patients aged between 18 and 25 years old. The vast majority of individuals admitted or investigated in heart clinics are usually in their sixth decade onwards. Most of these individuals have age-related problems such as high blood pressure, narrowing

What’s new for 2020:myheart enews Jan-Feb 2020

Please find in this e-newsletter information on: New booklet on ablationHeart Month-FebruaryDr Steven Cox, responds to the latest (Dec 2019) recommendations from the UK National Screening Committee (NSC)CRY’s myheart cardiologist, Dr Michael Papadakis’ storyBlog by myheart member, Amelia LongmanSue Jones to Film New VideosUpcoming myheart meetingRegistration for CRY Heart of London Bridges Walk 2020Private myheart Facebook groupGDPR Read the full newsletter and subscribe here.

Prof Michael Papadakis – Exercise in patients with Hypertrophic Cardiomyopathy

https://youtu.be/9I0-_x9XE6o On May 11 we hosted the first CRY Family Research Day, giving some of our supporters a chance to learn more about the massive impact of our research.  CRY myheart cardiologist Prof Michael Papadakis spoke on CRY Research Fellow Dr Joyee Basu’s presentation, looking at exercise in patients with Hypertrophic Cardiomyopathy (HCM). He noted the importance of “the quality of

My heart condition’s 25th anniversary by Kerry Shephard

Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready for college. 25 years since the doctors battled to save me in resus by stopping my heart twice and rebooting it. 25 years since I was told I was unique and had Wolff Parkinson White

My allergic reaction saved my life..

I have always fainted for as long as I can remember, through assembly at school or if I stood up for long periods of time. My parents kept taking me to the GP who said I had low blood pressure which probably explained the fainting.  When I was around 11 I started to develop quite severe chest pain on the

CRY’s myheart cardiologist, Professor Michael Papadakis’ story

Michael Papadakis cannot remember a time that he did not want to be a doctor. His mother, devoted to her husband and children, was a dynamic business woman who proved a tough taskmistress and, from the start of his early days at his primary school in Chania, Crete, emphasised that she expected an 80% pass rate for his schoolwork. His