Never Miss a Beat
By Gem O’Reilly It’s a funny thing being told you could potentially go into cardiac arrest for something you can’t necessarily see or feel. It’s a surreal, intangible experience and very scary. That’s what happened to me when I was 16. I was diagnosed with Long QT Syndrome, which basically means my heart struggles to […]
How research can lead to review and potential reform for UK screening policy
Interview with Dr Harshil Dhutia (Consultant cardiologist, Glenfield Hospital Leicester & Clinical Lead for the Inherited Cardiac Conditions service, University Hospitals of Leicester):
CRY’s Research Fellows – both past and present – are playing an increasing role in helping to inform and influence decision makers, based on their highly acclaimed, published research papers and the findings they present at UK and international conferences.
Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: April 29, 2024 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds […]
Empowering Hearts: Dr. Joyee Basu’s Groundbreaking Research Redefines Exercise Guidelines for Hypertrophic Cardiomyopathy Patients
The issue around the impact of exercise and physical activity on young people living with a heart condition is something that is much debated amongst both physicians themselves on the ‘conference circuit’ and often comes up at CRY’s myheart meetings, too. Indeed, CRY’s cardiology experts are commonly asked, ‘is it safe for me to exercise?’ or ‘should I even break into a sweat’.’
National myheart meeting-16th March,2024
A myheart members’ meeting was held at Friends House, 173-177 Euston Road, London NW1 2BJ, between 2pm-5pm on Saturday 16th March 2024. Please find the feedback form below for the meeting below. There was a Q and A session with cardiologist, Dr Raghav Bhatia. In this session, members asked questions they had about their condition, the […]
Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS
Members with cardiac conditions may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs to avoid list https://crediblemeds.org/everyone/. We have recently received the following message through CredibleMeds: December 12, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: AZCERT’s Scientific Review Committee has found
Leading researchers gather at St George’s University of London, to showcase a portfolio of projects funded by Cardiac Risk in the Young
Friday October 20th saw the welcome return of CRY’s Annual Medical Conference to an ‘in person’ event (following three years of remote access) – with a new venue for 2023, The Curve Lecture Theatre at the heart of St George’s, University of London, fittingly the home of CRY’s internationally acclaimed research programme and the CRY Centre of Cardiac Pathology (CCCP).
Focus group for patients with DCM and ARVC
On the 29th of September, a focus group for patients with dilated and arrhythmogenic cardiomyopathy has been organized by CRY and by Dr Gherardo Finocchiaro, Consultant Cardiologist at St George’s Hospital and Honorary Senior Lecturer and St George’s University of London. Dr Finocchiaro and his team at St George’s Hospital are aiming to organize a randomised clinical trial focused on moderate
myheart enews-Jun to Sept 2023
Dear myheart members,In this e-newsletter you can find information about: The impact of exercise and physical activity on young people with a heart condition CRY Research Fellow, Dr Raghav Bhatia reflects on his recent research award myheart members, Cara Bunn, Megan Turner and Lewis Nicholson’s stories RSM’s Medicine and Me Conference Online myheart meeting Volunteering for CRY myheart hard copy newsletter Update
Medicine and Me Conference
https://www.youtube.com/embed/-CwZTp6mnhc Talks included*: 0:00 to 5:30 – Welcome and introduction – Dr Steven Cox1:12:00 to 1:27:00 – How can we identify young people with cardiac conditions – Professor Sanjay Sharma1:27:00 to 1:46:00 – How do we risk stratify young people identified with cardiac conditions – Professor Michael Papadakis1:46:00 to 2:02:00– How often should patients with cardiac conditions be tested/re-tested? – Professor Sanjay Sharma2:02:00 to 2:25:00 – How can patients
