Parliamentary Reception

The beating heart of British democracy was certainly an appropriate place for the Cardiac Risk in the Young reception! And what a beautiful location. The imposing statue of Oliver Cromwell greeted me at security, paintings of significant moments in British history lined the corridors on the way to the reception. The room itself overlooked the Thames – it was so

Great Cake Day

I got to work early on the CRY Great Cake Day. I carefully opened two big cake tins, one full of coconut macaroons, each topped with a glace cherry and resting on a square of CRY rice paper, the other full of Deliciously Ella almond-and-sea-salt brownies. This was only my second week at this new job, so I was a

A brave night walking on fire for heart charity

myheart member, Chris Smith and his mum, held a Firewalk on the 10th September at The Lord Nelson, Chorley.  17 people took part including Chris and his mum, it was a great evening. Everyone that took part enjoyed the night. A raffle supported by the Heartfelt members was also held. A fantastic total of £2155 was raised for CRY. For a detailed write-up

Making Sure

As it approaches a year since I had my ablation, I’m coming to the end of the extra tests my cardiologists wanted me to have to make sure my heart condition had been completely fixed. I had two exercise tests and an echo, which all seemed to show normal results, so I’m very much hoping I’ll get the all clear

WPW Recover and running the London Marathon

After becoming active and running my first half marathon in October 2014, I became unwell suffering from dizziness, tiredness and palpitations. A few weeks later , after a number of tests, the doctors told me they thought I had a condition called Wolff Parkinson White Syndrome. I’d never heard of it and at the time it didn’t strike me that

Living with ARVC and an ICD

6 days after my 26th birthday I went for a run one evening (15th June 2016) with a friend and a group of runners and I suffered a cardiac arrest after finishing the run. I have no memory of it it’s what I’ve been told by others. I had CPR performed on me at the scene and was shocked twice

myheart e-newsletter Jun-Aug

Dear myheart members  Please find in this newsletter:  Bridges Walk 2016 Upcoming myheart meeting CRY Cake Bake and National Awareness Week Stand at the Congenital Heart Disease Conference Activity on the myheart website Feedback Social Media Read the full newsletter here.

Stand at the Congenital Heart Disease Conference 2016

This established annual course runs for nurses and Allied Health Practitioners working with infants, children and young people who have congenital heart disease and related cardiac conditions. The course is run collaboratively by the Practice Educators and Specialist Staff of the London Congenital Heart Centres and attracts attendees from Cardiac Centres in the UK, Ireland, Europe and further afield.  The

CRY Heart of London Bridges Walk 2016

Sunday, 26th June witnessed a huge number of walkers gathered at London’s scenic green space, Potters Fields Park, with 1,266 walkers registering to take part in CRY’s 10th annual Heart of London Bridges Walk.      myheart members, L-R- Mhairi Morrison, Laura Gibbs and Amanda Okunola As ever, it was incredibly moving to see so many people coming together to