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myheart hard copy newsletter-2022

Members who subscribed to the myheart hard copy newsletter should have now received it. Read the online version here. Subscribe to myheart mailings here.

Online myheart meeting with Dr Sabiha Gati-Saturday, 4th November, 2023

A myheart members’ video meeting was held on Saturday, 4th November, 2023.  Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful.  It does not matter how long ago you were diagnosed or whether you are undergoing

‘Heart issues don’t mean your life is over’ by Lewis Nicholson

This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI technician having a good eye, I am still here. In 2012 I was 18 years old and despite having an extremely active childhood including playing Rugby 6 days a week and through all months of the

Update from CredibleMeds

We have received the following from CredibleMeds. Subscribe to their newsletter if you would like to receive regular updates from them too. June 26, 2023 Re: Changes to the QTdrugs List and List of Drugs to Avoid in cLQTS Dear CredibleMeds Registrants: AZCERT’s Scientific Review Committee has found substantial evidence that Pacritinib (anticancer), Vernakalant (antiarrhythmic) and Fexinidazole (antiparasitic) are associated with the development of QT prolongation but

CRY Medical Conference-2022

After a few successful years, the CRY Conference was held online for the third time in 2022. On October 20th and 21st, the conference was held in partnership with CRY and the European Association of Preventative Cardiology (EAPC). We were delighted to welcome leading experts in cardiology from around the world for presentations, discussion of case-based scenarios, and interactive debates

Why Do I Support CRY?

During Heart Month 2023, CRY launched ‘why do I support CRY?’. The campaign aimed to personify and tell the stories behind CRY. We asked our supporters to send in their reasons for supporting CRY so we could share across our social media what CRY means to so many. The campaign was met with hundreds of responses, many sharing deeply personal