Feedback about myheart meetings
Please read what our myheart members have to say about the meetings below: When I was first told that I needed an ICD implanted I was devastated and didn’t have a clue what to expect from the future. After googling (a lot) I came across CRY and gave them a call. I was signed up for the myheart meeting which
Rules for the members-only area
The members-only area rules lay out how members relate to one another in our online community. They relate to the discussion forum. Please read these along with our website terms of use. What is the members-only area for? Our member-only area is a place where young people who are coping with a diagnosis of a heart condition can share experiences, […]
Alerting people to your diagnosis in an emergency
MedicAlert in partnership with myheart It is recommended that anyone with a hidden medical condition carries a form of identification detailing their condition and any medication they are on. This could be in the form of a card placed somewhere visible in your wallet/purse, or an identification bracelet, help such as a MedicAlert bracelet. MedicAlert is the only registered charity
Midlands myheart Meeting – Sunday 16th November 2014
The next Midlands myheart meetingwill be held on Sunday 16th November, between 10am – 4pm, in Macdonald Burlington Hotel, Burlington Arcade, 126 New Street, Birmingham, B2 4JQ. Directions to the hotel can be found here. If you have questions about your condition or would like to meet other young people, aged 14 to 35, coping […]
Midlands Parent Support Session – Sunday 16th November 2014
The next Midlands parents support session will be taking place at Macdonald Burlington Hotel, urlington Arcade, 126 New Street, Birmingham, B2 4JQ, between 2pm-4pm on Sunday 16th November. Directions to the hotel can be found here. This session is for parents whose child has suddenly been diagnosed with a dangerous heart condition and would like to meet […]
South East myheart Meeting – Sunday 19th October 2014
The next South East myheart meeting will be held on Sunday 19th October, between 10am-4pm, in Holiday Inn London Sutton, Gibson Road, Sutton, Surrey, SM1 2RF. Directions to the hotel can be found here. If you have questions about your condition or would like to meet other young people, aged 14 to 35, coping with the […]
Atrial fibrillation references
1. Stewart S, Hart CL, Hole DJ, McMurray JJ. Population prevalence, incidence, and predictors of atrial fibrillation in the Renfrew/Paisley study. Heart. 2001;86:516–521. 2. Nabauer M, Gerth A, Limbourg T, Schneider S, Oeff M, Kirchhof P, Goette A, Lewalter T, Ravens U, Meinertz T, Breithardt G, Steinbeck G. The Registry of the German […]
Technical Terms
Alcohol septal ablation If you have HCM that makes you breathless, dizzy or suffer chest pain, this may be due to blockage of the flow of blood from the main pumping chamber in the heart due to thickening of the heart muscle. An injection of alcohol into the blood vessel supplying this bit of muscle […]
Cardiac magnetic resonance/Magnetic resonance imaging (CMR/MRI) scan
Cardiac magnetic resonance/Magnetic resonance imaging (CMR/MRI) scan This is a special kind of scan used to examine the structure of the heart and the nature of its muscle. It uses a magnetic resonance scanner that creates intense fluctuating magnetic fields around your body while you are inside the scanner. This generates the signals that make […]
Cardiomemo and event recorder
Cardiomemo and event recorder These are more sophisticated versions of the basic Holter. Whenever you have an attack of symptoms, you can activate the device to record your heart’s rhythm. (You can also do this with the digital Holter.) The advantage of the cardiomemo is that it doesn’t have any leads, so you can just […]
