CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
In April of this year, I was diagnosed with Long QT Syndrome (LQTS). In the midst of a pandemic, this was the most unwelcome conclusion
I had no idea at the end of the summer holidays in 2011 that the following months would be a defining period of my life.
A myheart members’ video meeting is planned between 1pm-3pm on Saturday 17th October, 2020. Registered members can start logging in from 12:45pm. Meetings are free to