CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
I would like to share our story to help raise awareness of fatal Genetic Heart Conditions. In March 2016, our daughter – Hollie Cannon, then
A myheart members’ meeting is planned at Friends House, 173-177 Euston Road, London NW1 2BJ, between 10am-3pm on Saturday 16th November, 2019. Registrations begin at
George Ashby has made an inspiring video about his experience after being diagnosed with a heart condition. George’s mother, Amelia Ashby found that George has
George Ashby had no idea that something could be wrong with his heart. His mum Amelia, a GP, had just got a new stethoscope when,
My animation consists of 1038 drawings all combined into a video lasting one minute and twenty-six seconds. In this short time I want to help
We are so grateful to our supporters who offer up their time. From being an official CRY ‘cheerer’ at a mass participation event, helping to
The last thing on Calum Haggett’s mind was a potential heart problem, let alone open heart surgery. As a young, fit athlete who had just
CRY’s wealth of support continues to grow in new ways. For years our Patrons have supported us, accompanying the valued attention that celebrity brings with
Sabiha started as a CRY Research Fellow in 2010. She was the first CRY Fellow to complete a PhD, winning several awards and prizes for
A digital copy of the myheart Newsletter 2018 is now available to read here on Issuu. Catch up on the latest news and updates, research
Members with long QT syndrome may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs
My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone
In this e-newsletter you can find information about: CRY Heart of London Bridges Walk Upcoming myheart meeting Heart Month (February) Idiopathic Polymorphic Ventricular Tachycardia, by Hollie
