CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition. myheart is a support system for individuals to help develop effective coping strategies and reduce social isolation.
The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.
Please find in this e-newsletter information on: New booklet on ablation Heart Month-February Dr Steven Cox, responds to the latest (Dec 2019) recommendations from the
My animation consists of 1038 drawings all combined into a video lasting one minute and twenty-six seconds. In this short time I want to help
We are so grateful to our supporters who offer up their time. From being an official CRY ‘cheerer’ at a mass participation event, helping to
The last thing on Calum Haggett’s mind was a potential heart problem, let alone open heart surgery. As a young, fit athlete who had just
CRY’s wealth of support continues to grow in new ways. For years our Patrons have supported us, accompanying the valued attention that celebrity brings with
Sabiha started as a CRY Research Fellow in 2010. She was the first CRY Fellow to complete a PhD, winning several awards and prizes for
A digital copy of the myheart Newsletter 2018 is now available to read here on Issuu. Catch up on the latest news and updates, research
Members with long QT syndrome may like to consider registering with CredibleMeds to be kept up to date with any changes to the QT drugs
My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone
In this e-newsletter you can find information about: CRY Heart of London Bridges Walk Upcoming myheart meeting Heart Month (February) Idiopathic Polymorphic Ventricular Tachycardia, by Hollie
Did you know that, as a patient with congenital heart disease (CHD) or carer for adults/children with this condition, you can join a team who
Registration is open and we have supporters signing up everyday! Join CRY and the 100 people already signed up for a chance to connect and remember. New
Since having my little boy 3 years ago this month I haven’t really felt well and have been suffering palpitations, dizzy spells and feeling breathless.
