Antony Eames
Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting at 4 years old. From then on I passed out regularly. Sometimes I passed out several times a day. During this time I was not allowed to do any school sport or go out in
Living with Brugada – Bradley Farrow
Living with Brugada I did not realise that anything was wrong with me. Occasionally I would notice that my heart seemed to be going fast like it does when you’ve just been running, but I would not have been running. I didn’t think anything of it as it didn’t bother me and at 15 why would I think there was
Living with endocardial fibroelastosis – Catherine McGough
Living with endocardial fibroelastosis My name is Catherine and I thought I would tell my story so that maybe it will give others a bit of hope. I am now 24 yrs old. When I was 7 weeks old back in December 1979, I was rushed into the Leeds General Infirmary having heart failure. After I’d had some tests done
Louise Dee
Living with long QT syndrome Hi, my name is Louise. It all started in 1990 when I was 8 yrs old. I woke up hearing an alarm clock and realised it was my mother’s for work, so I got out of bed and went to turn the alarm off. When I went into her bedroom I turned the alarm off
Living with arrhythmogenic right ventricular cardiomyopathy (ARVC) – Rob Jackson
Living with arrhythmogenic right ventricular cardiomyopathy (ARVC) I am a 31 year old Sergeant in the Army Air Corps and until recently was a Lynx Helicopter pilot and aircraft commander operating in Northern Ireland. I joined the Army at 18 and have spent the past 12 years living an active, healthy lifestyle as a soldier. I passed the Army Pilots
Living with hypertrophic cardiomyopathy – Jack Wright
Living with hypertrophic cardiomyopathy Jack, our six year old son – usually referred to as Jack Wright – left for school as usual on the morning of Tuesday 20th June 2006. He was arguing with his eleven year old sister Abigail and Mum Tracey on the way out of the front door, with his hair sticking up despite attempts to
Living with supraventricular tachycardia – George Ranger
Living with supraventricular tachycardia I am writing to thank you so much for your kind help and support that you gave to me at the end of last year when I telephoned CRY extremely worried about my son George. If you remember, George is at Lord Wandsworth College and I was having terrible trouble getting him diagnosed with any problem
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition – Barry Hooton
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition This story comes from two people – me, Anna (aged 17), a.k.a. “the girlfriend” and Barry (aged 23), a.k.a. “the mystery.” Its a long story, but perhaps may give hope to those who are also undiagnosed just like Barry. This story begins on June 1st, 2007 – it was
My Myocarditis by Alex Archer-Todde
Myocarditis At the end of March and the beginning of April 2007 I almost died. A lot of people were asking me about this at the time of writing, so if you want to know or just want a read, then here it is. I’ve put this in writing because it’s a morbid thing to talk about and I’m not
Living with Wolff Parkinson White syndrome – Ian Tunnell
Living with Wolff Parkinson White syndrome I would like to recount the circumstances surrounding my son’s experience of Wolff Parkinson White syndrome (WPW) in the hope that other young people, particularly students, will take heed and (a) register with a GP, and (b) go to see them when they’re not well. We had taken Ian back to Cambridge University the
