Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition – Barry Hooton
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition This story comes from two people – me, Anna (aged 17), a.k.a. “the girlfriend” and Barry (aged 23), a.k.a. “the mystery.” Its a long story, but perhaps may give hope to those who are also undiagnosed just like Barry. This story begins on June 1st, 2007 – it was
My Myocarditis by Alex Archer-Todde
Myocarditis At the end of March and the beginning of April 2007 I almost died. A lot of people were asking me about this at the time of writing, so if you want to know or just want a read, then here it is. I’ve put this in writing because it’s a morbid thing to talk about and I’m not
Living with Wolff Parkinson White syndrome – Ian Tunnell
Living with Wolff Parkinson White syndrome I would like to recount the circumstances surrounding my son’s experience of Wolff Parkinson White syndrome (WPW) in the hope that other young people, particularly students, will take heed and (a) register with a GP, and (b) go to see them when they’re not well. We had taken Ian back to Cambridge University the
Andy Perry
Living with hypertrophic cardiomyopathy My name is Andy. I’m now 38 and at the tender age of 7 after dental treatment, I was ill and taken to the local hospital. After several tests they diagnosed me with a heart murmur. Several years later, attending senior school aged 11, I was taken ill doing sports. My mother went along with me
Debra Whiting
Living with right ventricle outflow tract tachycardia (RVOT-T) I was always really sporty when I was younger. I used to be in the netball team at school and represented my county at swimming and horse riding. I did occasionally used to get a flutter in my heart after I had really exerted myself but I never really thought anything of
Francesca Maretic
Living with Wolff Parkinson White syndrome My name is Fran and I’m an average girl except for the fact that at the moment I have Wolff Parkinson White syndrome (WPW). WPW means I have an extra pathway in my heart and sometimes my heart will beat really fast because of this. The first time I found out about my condition
Tracey Duncan
Living with right ventricular outflow tract ventricular tachycardia (RVOT-VT) 2002 was the best season of my career in terms of development; I represented England at the Commonwealth Games in Manchester, and also Great Britain at the European Championships in Munich, in the 400 metre Hurdles. So, 2 years later I felt ready to qualify for the Great Britain Olympic Team.
Jenny Justice
Living with Wolff Parkinson White syndrome I had Wolff-Parkinson-White syndrome (WPW) when I was a child. I remember waking up because my heart would start beating very rapidly and for about 2 or 3 years my parents thought I was exaggerating when I told them my heart was beating fast. As I grew into a young teen I became very
Joseph Tanner
Living with Brugada syndrome (type 3) Sunday 16th March 2008, I had a cardiac arrest and died for 7 minutes. I collapsed at the finishing line of the Hastings half marathon. I had no clue that I had an undiagnosed heart condition, I always considered myself a healthy person. Before this fateful day, I would run roughly 20+ miles a
Paul Cooper
Living with atrial fibrillation My story began 19 years ago – I am 39 now. I was out with some mates one night, when I felt a funny ‘butterfly’ feeling in my chest – it felt like my heart was racing. That night I went to the hospital with my mate and they did an ECG. My heart was doing 188 and was
