Category: Frontpage

A few more tests

For those of you following my story, you will be aware that I went to the doctor worried that my WPW had returned. Since then, I had another consultation with a cardiologist who confirmed that it wasn’t WPW, but explained that what I was feeling was most likely an ectopic beat. This is perfectly normal, but can be what triggers

myheart Apr-May e-newsletter

Dear myheart members We would like to give a warm welcome to our 50 new members who have joined myheart since January, many of whom have kindly said that they have found the myheart website with information about conditions and personal stories from other members very useful. We are very grateful to our members who have shared their own experiences

WPW – the risk of return

I had been doing pretty well in my training, but on a couple of runs my heart went a little faster than usual. To be on the safe side, I referred myself for an ECG. I took the result to my GP, who took a look, said it seemed fine, but then paused. He looked something up, drew himself a

Running in the Rain

The Easter weekend brought chocolate for many, hot cross buns for some, but for me it brought a 30k run through the wrath of Storm Katie! It was a hard, hilly run, but made infinitely better by the kindness of a family living in a tiny sandstone Cotswolds village who re-filled by water bottle for me when I reached the

myheart March e-newsletter

Dear myheart members Thank you to all members who helped raise awareness of Cardiac Risk in the Young (CRY) andmyheart last year. The hard copy newsletter featuring last year’s activities will be mailed to you shortly. 2016 has begun on a very exciting note for myheart . Whilst the myheart website was re-launched in January and has managed to gather

Hearts in Haringey

I love long distance running. Like, really long distances. So when I was diagnosed with Wolff Parkinson White syndrome, it was very difficult to have to cut down to just the odd 5k, constantly monitoring my heart rate as I ran. But in November, I had an operation that fixed my heart condition, and to celebrate I am going to

Stand at ‘Up the Pace’ organised by Bristol Children’s Hospital

Cardiac Risk in the Young (CRY) was very kindly invited to hold a stand at ‘Up the Pace’, an annual event in its sixth year, organised by Bristol Children’s Hospital at At-Bristol Science Centre in Bristol on 5th March. Kanika Bhateja, CRY’s myheart coordinator attended the event. There were about 100 young pacemaker and ICD patients who go to Bristol

Getting the settings of an ICD right

Watch CRY’s myheart cardiologist, Professor Michael Papadakis, talk about the reasons to get the settings of an ICD right if you do intensive exercise. It is very important for individuals who have an ICD that the cardiologist takes a comprehensive history before implanting and after the ICD as to what the intentions of that particular individual are. Let’s give an

Limitations of an ICD

Watch CRY’s myheart cardiologist, Dr Michael Papadakis, talk about the limitations of an ICD below. As the technology develops, new devices come into the market. So for the conventional ICD, what you’re required to do is you need to make a small cut under the left collarbone in most individuals, then find the veins that go down to the heart,