My story so far – Left Ventricular Non-Compaction Cardiomyopathy
Hello. My name is Phoebe and I’m 22 years old. When I was three years old, I was admitted to Great Ormond Street Hospital to have open heart surgery to repair an Atrial Septal Defect (ASD), other wise known as a hole in my heart. Since then I was very healthy and finished school and college without many difficulties. For
Looking Back at 25: The ICAP Charity Day and launching CRY’s national screening centre
Our last blog post on CRY’s screening programme focused on the early years. We looked back to when our testing was just getting underway and how we developed over the late ‘90s and early 2000s. Now let’s fast forward a few years. In 2009, CRY was chosen as one of the charities to benefit from the ICAP Charity Day. ICAP is a
Looking Back at 25: CRY’s first Ambassadors… meet CRY Teddy
Have you ever wondered why a teddy in a t-shirt sometimes pops up on CRY’s posters or turns up at events? Why would one of CRY’s furry friends be pictured on a flyer, helping to promote CRY’s 2020 Heart of London Bridges Walk… and why might we be seeing more of our so-called ‘CRY Teddy’ during the 25th anniversary year? In
Looking Back at 25: The beginning of CRY’s screening programme
CRY Founder Alison Cox MBE first had the idea to offer cardiac screening to young people in 1993. Alison discussed this with Professor William McKenna, and with the help of the Lawn Tennis Association, CRY held its first ever screening event in 1993. This was for elite tennis players at the Lawn tennis Association National Tournament, and players such as
Looking Back at 25: The volunteers who helped get CRY started
As CRY began taking its early steps as an official charity (for the formative years, in a temporary office in the spare bedroom at Alison Cox’s home in Surrey) it soon became clear that Alison couldn’t do it all by herself. The vision was big and interest in the charity was also starting to get bigger… but resources and funding
myheart enews- March-May 2020
Dear myheart members Thank you to all of you who are helping raise funds and awareness of Cardiac Risk in the Young (CRY) and myheart in these unprecedented times. Please find in this newsletter information on: Information on COVID-19 for heart patientsRevisions to the CredibleMeds ListsInterview with Consultant Cardiologist, Dr Sabiha GatiBlog by CRY Founder, Alison Cox, on how she learned first
Looking Back at 25: CRY’s first fundraiser
This is the second part of CRY’s “Looking Back at 25” series. As we mark our 25th year anniversary, these articles will remember key parts of CRY’s history, and tell the story of how the charity has developed and got to where it is today. ….. Those familiar with CRY’s history will be familiar with the Skipathon! If not, we’ll
Comparing 2008 to now
Being in lockdown, being in isolation it’s made me re-experience a life I had before and compare the feelings I have now, to that I had back then. We all live life a little blindly, we all learn from an early age about death, but for many years we’re shielded from it by our parents, then when we do understand
How I first learned about cardiac conditions in young people – By CRY Founder Alison Cox MBE
This is the first part of CRY’s “Looking Back at 25” series. As we mark our 25th year anniversary, these articles will remember key parts of CRY’s history, and look at how the charity has developed and got to where it is today. After one year at a tennis orientated Texas High School and a second at a small university,
Online myheart meeting with Dr Sabiha Gati
A myheart members’ video meeting is planned between 5pm-7pm on Saturday 3rd April, 2020. Registered members can start logging in from 4:45pm. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how
