624 Reasons Why by Joe McEwan

My name is Joe, and I suppose you could say I’m your fairly average 23-year-old man. I graduated from university with a law degree in 2022, have played sport pretty much my whole life and I love travel, playing guitar and art. I also had a sudden cardiac arrest at the age of 22. September […]

Empowering Hearts: Dr. Joyee Basu’s Groundbreaking Research Redefines Exercise Guidelines for Hypertrophic Cardiomyopathy Patients

CRY’s Research Fellows – both past and present – have an outstanding reputation of submitting and publishing papers, sharing and showcasing their projects with peers and key decision makers and presenting findings at UK and international conferences. The issue around the impact of exercise and physical activity on young people living with a heart condition […]

Life with LQTS and LVNC by Abi Edwards

October 2018, aged 14 and asymptomatic- I was taken to a CRY screening as a precautionary check by my mum at St. George’s Hospital. Little did I know that that test would be the beginning of a whole new journey in my life. I was told that they had picked up an abnormality and they […]

Every Cloud by Thomas Flanighan

After serving nine years in the military as a Royal Marines Commando, I needed a new challenge and started striving towards a career as a Commercial Pilot. The flying medical involved an ECG which showed abnormal results. At the time, I was not concerned as the Doctor who performed it was almost certain it was […]

I am forever grateful to the GP who saved my life! Blog by Roxy Ball

From being little I always remember I found running and PE hard. I was good at rounders because I could hit the ball and then race around the posts! But everything else I was bad at. I never had any stamina! I always got worried about things too, it would just come on. I used […]

My story so far – Left Ventricular Non-Compaction Cardiomyopathy

Hello. My name is Phoebe and I’m 22 years old. When I was three years old, I was admitted to Great Ormond Street Hospital to have open heart surgery to repair an Atrial Septal Defect (ASD), other wise known as a hole in my heart. Since then I was very healthy and finished school and […]

Comparing 2008 to now

Being in lockdown, being in isolation it’s made me re-experience a life I had before and compare the feelings I have now, to that I had back then. We all live life a little blindly, we all learn from an early age about death, but for many years we’re shielded from it by our parents, […]

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