My heart stopped with no warning at all! by Jade Hobman
Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday as I skateboard everywhere. Around 5 pm, when I was skating down the road, my heart just stopped with no warning at all! I remember waking up in hospital thinking, […]
My heart condition’s 25th anniversary by Kerry Shephard
Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready for college. 25 years since the doctors battled to save me in resus by stopping my heart twice and rebooting it. 25 years since I was told I was unique […]
My allergic reaction saved my life..
I have always fainted for as long as I can remember, through assembly at school or if I stood up for long periods of time. My parents kept taking me to the GP who said I had low blood pressure which probably explained the fainting. When I was around 11 I started to develop quite […]
I never really thought much about having a heart condition until I had my son! by Jodie Pearson
My Long QT story – by Jodie Pearson, age 36 I was diagnosed with Long QT1 in 2010 when I was 27 years old. A close relative had been having “funny turns” at work with palpitations. Following one of these funny turns my relative went to see our GP, which my relative never does of […]
If only Hollie was screened at an early age!
I would like to share our story to help raise awareness of fatal Genetic Heart Conditions. In March 2016, our daughter – Hollie Cannon, then aged 15 years, collapsed suddenly at school having displayed no symptoms of an underlying issue. She was fit, well and extremely sporty. She participated in most sports her favourites being […]
CRY’s myheart representative Rebekah Goddard’s story
It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my father found me unresponsive on the bathroom floor, before resuscitating me – I later found out that 95% of females who suffer their first major ‘event’ do not survive. My […]
The Story of my Heart Disease – by George Ashby
George Ashby has made an inspiring video about his experience after being diagnosed with a heart condition. George’s mother, Amelia Ashby found that George has a heart murmer after a listen to his chest when testing out her new stethoscope, he then went on for further treatment and surgery as shown in his video. Last […]
My journey with ALCAPA – My Story by Serena Freeman
My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone on my lunch break when I had a sudden cardiac arrest. The people around me called for an ambulance and one of the men was then guided through CPR and […]
Idiopathic Polymorphic Ventricular Tachycardia – My Story by Hollie Bell
Since having my little boy 3 years ago this month I haven’t really felt well and have been suffering palpitations, dizzy spells and feeling breathless. My GP just kept putting it down to post natal depression and anxiety. I would only get the funny palpitations about 10 days before my period was due, and then […]
I was diagnosed with LQT after 20 years..by Rebecca Scheffe
My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called […]