My journey with ARVC by Gavin Boyce
My journey with ARVC started on January 16th 2012 when I woke up in hospital to see a nurse looking back at me trying to offer me some reassuring words. She said I was in hospital and that there was a lot to explain, she was going to call my wife to let her know […]
Living with a Fontan Circulation – Tricuspid Atresia by Jara Weinkauf
Even though there was no history of heart disease in my family and my parents led a very healthy lifestyle, I was born with tricuspid atresia in 1986 in Berlin/Germany. Doctors noticed that my skin was very blue and something had to be wrong with me. After a palliative operation as a baby, I had […]
Super Ventricular Tachycardia (SVT) by Samantha McLaren
I have been suffering from SVT attacks since March 2010 when I suddenly collapsed at work. I was taken to A&E for tests, my heart rate was very high reaching over 200BPM, I remember being very scared as I was never in hospital and was always fit and healthy. They gave me a 6mg jag […]
Paul Cowling-DCM
Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a heart condition sucks. I mean, it really sucks. It’s a massive thing to have to comprehend; that the core element of us, the heart, doesn’t […]
Zenia Selby- earlier diagnosed with WPW
I was out on a 5k run when suddenly my heart started beating several times faster than it should have been. I stopped, sat down, breathed deeply, but nothing would stop it. I was in the middle of a wood when it happened, exactly halfway through the run and so about 2.5k away from home. After […]
Paula Beck
Paula Beck (Simmonds) wrote her story to be included in the myheart booklet which was launched in November, 2013. I was diagnosed with Brugada syndrome on 8th August 2011 at St George’s Hospital. I am a mum of two, one of four siblings and was only 30 when diagnosed. Our family underwent tests after my […]
Alessandro Miccoli
Alessandro Miccoli wrote his story to be included in the myheart booklet which was launched in November, 2013. It wasn’t until the end of 2012 that a journalist first introduced me to the charity CRY. I quickly became aware of the amazing work they do in helping promote awareness of heart conditions in the young. […]
Emma Jackson
Emma Jackson wrote her story to be included in the myheart booklet which was launched in November, 2013. I never liked sports when I was younger and was never any good. I remember having strange missed beats, tiredness and slight dizziness but thought this was normal. It was pure chance that a doctor noticed a […]
Sian Donnelly
Sian Donnelly wrote her story to be included in the myheart booklet which was launched in November, 2013. Whilst on a family holiday in 2004, my brother Adam died suddenly whilst playing volleyball at our hotel. After two post-mortems we were told that he had died from SADS (sudden adult death syndrome). At the time, we […]
Chris Currie
Chris Currie wrote his story to be included in the myheart booklet which was launched in November, 2013. I was 24 and having the time of my life travelling around the world with two friends. We had made it to Bangkok when we found ourselves in a bar and I literally keeled over. I am […]