My story of being diagnosed with LQT in the midst of a pandemic by Ruth Williams
In April of this year, I was diagnosed with Long QT Syndrome (LQTS). In the midst of a pandemic, this was the most unwelcome conclusion to my ongoing investigations! In 2001, my sister Ellie died very suddenly whilst on a telephone call with me one morning. I found her body later that day with the phone still in her hand.
A Reflection on My Experience Living with a Heart Condition by Daniel Redfearn
I had no idea at the end of the summer holidays in 2011 that the following months would be a defining period of my life. I was thirteen years old and soon to start another year of secondary school. At this time, my favourite activity was undoubtedly exercise – I followed many different sports and enjoyed playing them too. At
My story so far – Left Ventricular Non-Compaction Cardiomyopathy
Hello. My name is Phoebe and I’m 22 years old. When I was three years old, I was admitted to Great Ormond Street Hospital to have open heart surgery to repair an Atrial Septal Defect (ASD), other wise known as a hole in my heart. Since then I was very healthy and finished school and college without many difficulties. For
Comparing 2008 to now
Being in lockdown, being in isolation it’s made me re-experience a life I had before and compare the feelings I have now, to that I had back then. We all live life a little blindly, we all learn from an early age about death, but for many years we’re shielded from it by our parents, then when we do understand
Brugada and Self-Isolation
Monday 16th March I celebrated my 12th re-birthday, re-birthday is a term that all cardiac arrest survivors use to celebrate surviving a cardiac arrest. I didn’t really celebrate it this year, maybe ‘cause of this underlying cloud that was shadowing the world. This cloud, this virus COVID-19/ Coronavirus, we first heard about this virus whilst we were on holiday in
My heart stopped with no warning at all! by Jade Hobman
Last year, on the 28th of August, it was a normal day for me and I was skating down the road like I do everyday as I skateboard everywhere. Around 5 pm, when I was skating down the road, my heart just stopped with no warning at all! I remember waking up in hospital thinking, “why am I here, did
My heart condition’s 25th anniversary by Kerry Shephard
Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready for college. 25 years since the doctors battled to save me in resus by stopping my heart twice and rebooting it. 25 years since I was told I was unique and had Wolff Parkinson White
My allergic reaction saved my life..
I have always fainted for as long as I can remember, through assembly at school or if I stood up for long periods of time. My parents kept taking me to the GP who said I had low blood pressure which probably explained the fainting. When I was around 11 I started to develop quite severe chest pain on the
I never really thought much about having a heart condition until I had my son! by Jodie Pearson
My Long QT story – by Jodie Pearson, age 36 I was diagnosed with Long QT1 in 2010 when I was 27 years old. A close relative had been having “funny turns” at work with palpitations. Following one of these funny turns my relative went to see our GP, which my relative never does of their own accord. Anyway following
If only Hollie was screened at an early age!
I would like to share our story to help raise awareness of fatal Genetic Heart Conditions. In March 2016, our daughter – Hollie Cannon, then aged 15 years, collapsed suddenly at school having displayed no symptoms of an underlying issue. She was fit, well and extremely sporty. She participated in most sports her favourites being netball and handball and enjoyed