Living with hypertrophic cardiomyopathy – Danielle Cummings
Living with hypertrophic cardiomyopathy I was diagnosed with hypertrophic cardiomyopathy as a baby. My dad and the majority of his family suffered from the disease. It was my parents’ decision for me to undergo genetic testing, which came back positive for having the gene but not the disease. While growing up I had biannual checkups at Great Ormond Street Hospital,
Emmerson Hird
On Wednesday 6th June 2012 my 17 year old nephew Emmerson Hird survived a cardiac arrest. Emmerson had been playing upstairs on his X-box with his girlfriend Micha. As he went to get up he fell down onto her. At first she thought he was messing about but quickly realised something was wrong and shouted for Emmerson’s brother. Emmerson had
Living with long QT syndrome – Jessica Goddard
Living with long QT syndrome Jessica Jane Goddard was born on the 27th July 2007. She was 3 years old when in May 2010 we received a phone call that would change her life forever… My name is Rebekah Goddard and I am Jessica’s mother. I was diagnosed with long QT syndrome in July 2001 at the age of twenty-five, after
Living with long QT syndrome – Rebekah Goddard
Living with long QT syndrome Even at the age of nine the signs were there, but no one realised what they meant. I recall going home from school near to tears as I had, had a ‘panic attack’ in the school assembly hall…. yet again. My heart pounded and I felt sick as well as cold sweats and on top
Living with my condition supraventricular tachycardia, struggling with my head – Gary McElkerney
Living with my condition supraventricular tachycardia, struggling with my head Limerick Vikings American Football Team were always going to be a tough team to play and making the 5 hour coach journey to Limerick University was always going to be a disadvantage. It was the 25th July 2009. I got off the coach after a 6am start and remember saying
Living with hypertrophic cardiomyopathy – Dan Reeves
Living with hypertrophic cardiomyopathy December 3rd 2010 started out as any other normal day (although, when I look back now it’s as if the day was already planned out). School was closed as the weather had been bad all week and buses couldn’t get through. I had been at work that morning but as the snow was so bad I
Living with right ventricle outflow tract ventricular tachycardia (RVOT-VT) – Abi
Living with right ventricle outflow tract ventricular tachycardia (RVOT-VT) My condition came to light at the end of 2008 when I was 34. I’d been to the doctors to discuss these strange palpitations and dizzy spells I’d been experiencing, but was sent away and told it was due to “stress”. This seems to be the usual response from a GP
Living with Wolff-Parkinson-White syndrome – Louise Bees
Living with Wolff-Parkinson-White syndrome Hi, I got diagnosed with Wolff-Parkinson-White syndrome (WPW) after nearly dying giving birth to my son. I had suffered with palpitations for years, but nothing was done about it. Then, whilst I was pregnant, the attacks became more frequent and when I told my doctor I was given a 24-hour heart monitor to wear. After wearing the
Antony Eames
Tony Eames wrote his story to be included in the myheart booklet which was launched in November, 2013. I had my first episode of fainting at 4 years old. From then on I passed out regularly. Sometimes I passed out several times a day. During this time I was not allowed to do any school sport or go out in
Living with Brugada – Bradley Farrow
Living with Brugada I did not realise that anything was wrong with me. Occasionally I would notice that my heart seemed to be going fast like it does when you’ve just been running, but I would not have been running. I didn’t think anything of it as it didn’t bother me and at 15 why would I think there was
