My Long QT story – by Jodie Pearson, age 36 I was diagnosed with Long QT1 in 2010 when I was 27 years old. A close relative had been having “funny turns” at work with palpitations. Following one of these funny turns my relative went to see our GP, which my relative never does of their own accord. Anyway following
I would like to share our story to help raise awareness of fatal Genetic Heart Conditions. In March 2016, our daughter – Hollie Cannon, then aged 15 years, collapsed suddenly at school having displayed no symptoms of an underlying issue. She was fit, well and extremely sporty. She participated in most sports her favourites being netball and handball and enjoyed
It’s been 18 years since I was diagnosed with long QT syndrome and had my very first permanent pacemaker implanted; and 25 years since my father found me unresponsive on the bathroom floor, before resuscitating me – I later found out that 95% of females who suffer their first major ‘event’ do not survive. My father’s quick thinking had literally
George Ashby has made an inspiring video about his experience after being diagnosed with a heart condition. https://www.youtube.com/watch?v=wIpi1FqFJ7o George’s mother, Amelia Ashby found that George has a heart murmer after a listen to his chest when testing out her new stethoscope, he then went on for further treatment and surgery as shown in his video. Last weekend, the pair cycled
My journey with congenital heart disease began on 19th March 2018 when I was 18 years old. I was at work and had just gone on my lunch break when I had a sudden cardiac arrest. The people around me called for an ambulance and one of the men was then guided through CPR and without any training performed it
Since having my little boy 3 years ago this month I haven’t really felt well and have been suffering palpitations, dizzy spells and feeling breathless. My GP just kept putting it down to post natal depression and anxiety. I would only get the funny palpitations about 10 days before my period was due, and then they would stop once it
Earlier this year I decided to do a bit of a fundraiser, cheap but wanted it to be something a bit different. I chose these two charities as I worked for Deafblind UK and was involved with the important work they do for people with a combined sensory loss, and Cardiac Risk in the Young helped me when I was