CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition.
Dr Vicky Kelly is a Consultant Clinical Psychologist and Service Lead for the Barts Heart and Thorax Centre Psychological Services
So I am sitting on a sun lounger in Gran Canaria soaking up the December sun while my husband & 2 sons play golf & I realise that I now understand what it feels like to be ‘truly blessed’.
Our family story revolves around our eldest son Ben, who suffered an out of hospital cardiac arrest in October 2022 whilst visiting family in Perth, Australia.
Whilst in hospital, I was diagnosed with Long QT Syndrome, a rare genetic heart condition that I had never heard of. Very few people are affected by my type of Long QT Syndrome and like the minority of people who also suffer with this, I have learned to adapt and live with this condition, making the most of the path that I have been given.
