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  • Medical Information
    • Conditions
    • Lifestyle advice
    • Investigations
    • Treatments
    • FAQs
      • FAQs about ICDs
      • FAQ’s about CRY’s Research
  • Support
    • Online Support
    • Literature
    • Meetings
  • Members Stories
    • Members Stories – Conditions
    • Members Stories – Investigations
    • Members Stories – Treatments
    • Upload your own story
  • Awareness
  • Research
  • Contact us
  • Fundraising
    • myheart funds
  • Donate
  • Login / Log Out

myheart can help.

CRY’s myheart network provides personalised help, support, and information to individuals who have been diagnosed with a potentially life-threatening inherited or congenital cardiac condition.

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myheart support network meeting

myheart Members Stories

Did data save me? By Sam Morgan

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My life has changed forever but it will not define me! Blog by Nick Cassidy

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Getting diagnosed with a heart condition at 26 and pregnant

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My life changed without warning! by Rebecca Travis

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Did data save me? By Sam Morgan

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My life has changed forever but it will not define me! Blog by Nick Cassidy

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Getting diagnosed with a heart condition at 26 and pregnant

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My life changed without warning! by Rebecca Travis

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You never think this is going to happen to someone young…by Megan Turner

Dec 2021 was a scary time for me and my family. I gave birth to my beautiful baby boy on the 11th and on the 17th, I had a sudden…

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‘Heart issues don’t mean your life is over’ by Lewis Nicholson

This is my story and my journey as a person who had a catastrophic birth defect of my heart and by chance and a MRI technician having a good eye, I…

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My WPW story by Kathleen Dymond

My journey starts in my early teens when I became aware of my heart pounding in my chest, my heart racing, my throat constricting like hands that had wrapped themselves…

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I have a heart condition but it’s not the end of the world!-by Gem O’Reilly

Since being diagnosed with my heart condition at 16 years old, I’ve been trying to understand my body, to understand my limitations and capabilities.  That has stemmed into my life…

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Life with LQTS and LVNC by Abi Edwards

October 2018, aged 14 and asymptomatic- I was taken to a CRY screening as a precautionary check by my mum at St. George’s Hospital. Little did I know that that…

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Every Cloud by Thomas Flanighan

After serving nine years in the military as a Royal Marines Commando, I needed a new challenge and started striving towards a career as a Commercial Pilot. The flying medical…

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The network was developed in response to feedback from young people who found that support groups available were not effective in helping them deal with issues such as fitting of ICDs, pacemakers and undergoing ablation surgery. myheart have dedicated resources for young people under the age of 35 who have been diagnosed with a cardiac condition, as well as information and support resources for anyone over the age of 18 who has been diagnosed with a cardiac condition when they thought that they were fit and healthy.

Latest News

Autumn video myheart meeting-Saturday,18th October 2025

A myheart members’ video meeting was held on Saturday, 18th October 2025 between 10am and 12pm.  Meetings are free to

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My life changed without warning! by Rebecca Travis

Last year I was 25 years old, healthy, fit, and with no family history of heart disease when my life

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Dr Marwaha: Solving the Grey Zone – Differentiating Athlete’s Heart from early DCM

So, what happens next when a CRY-funded Research Fellow reaches the end of their 3-year tenure and returns to complete

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Website of Cardiac Risk in the Young

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