Joseph Tanner talks about doing the Brighton Marathon

myheart member, Joseph Tanner, talks about his experience of taking part in the Brighton Marathon, 2015 below. This story begins on Sunday 16 March 2008; I entered the Hastings Half Marathon. The week before the half marathon I had a cold, and at the time I didn’t think much of it. On race-day I felt […]

Paula Beck

Living with Brugada syndrome Watch myheart member Paula Beck speak with Professor Sharma about having Brugada syndrome below.

Sarah Bond

Living with Brugada syndrome I’m Sarah. In January 2012 I was diagnosed with a heart condition known as Brugada syndrome, something that I have had since birth yet was completely unaware of – living like any other healthy 31 year old woman; going to the gym, work and starting off newly married life with my […]

YBFIT by Paula Simmonds

My brother died suddenly, aged 31, in Australia. He was very fit and healthy. As a result, my family and I had to undergo genetic heart testing. Some of my family, including myself, were diagnosed with a hereditary heart condition called Brugada syndrome. Through this I was introduced to Cardiac Risk in the Young (CRY) […]

Drugs to avoid

In several heart conditions, particularly long QT syndrome and Brugada syndrome, certain medicines or drugs can cause problems and trigger dangerous heart rhythms. These should therefore be avoided. Unfortunately, sale there is a rather long list of these! However a compressive list is available on-line, which is regularly updated: For long QT syndrome: http://www.sads.org.uk/drugs-to-avoid Members with […]

Low potassium in the blood (hypokalaemia)

If you are ill and you vomit or have diarrhoea, your body loses some of its essential potassium supply. If you have long QT syndrome or Brugada syndrome, having a low level of potassium can make your condition worse. Therefore if you have vomiting or diarrhoea for more than one day, you should add a […]

Bradley Farrow

Living with Brugada I did not realise that anything was wrong with me. Occasionally I would notice that my heart seemed to be going fast like it does when you’ve just been running, but I would not have been running. I didn’t think anything of it as it didn’t bother me and at 15 why […]

Joseph Tanner

Living with Brugada syndrome (type 3) Sunday 16th March 2008, I had a cardiac arrest and died for 7 minutes. I collapsed at the finishing line of the Hastings half marathon. I had no clue that I had an undiagnosed heart condition, I always considered myself a healthy person. Before this fateful day, I would […]

Coronary angiography and electrophysiological study (EPS)

Your doctor may suggest that you have tests such as coronary angiography or an electrophysiological study (EPS). Both these tests are performed in an X-ray laboratory that allows the body and any medical tools (such as cardiac catheter tubes or pacing wires) to be seen using an X-ray camera. You will be asked to lie […]

Holter

The Holter is a recording device that comes in two different forms: a small portable tape recorder (like a walkman), or a small digital device the shape of a pager. You wear the device on a belt round your waist. Anything between three to twelve ECG leads from the device are taped to your chest. […]

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