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Due to the ongoing COVID-19 pandemic, the CRY Conference was moved online again for 2021. On October 14 and 15, the conference was hosted in partnership by CRY and the European Association of Preventive Cardiology (EAPC). We were thrilled to welcome leading experts in cardiology from around the globe for presentations, discussion of case-based scenarios, […]
A myheart members’ video meeting was held on Thursday, 17th March, 2022. Meetings are free to attend and give members an opportunity to meet and discuss their experiences in an informal but supportive environment. Those young people that attend these meetings usually find them very helpful. It does not matter how long ago you were diagnosed […]
Do the CRY Cardiologists and research team see many people with Brugada syndrome and how many need not have an ICD implanted ?
CRY’s myheart cardiologist, Dr Michael Papadakis, answers this question in the video below.
When thinking about fundraising for a charity, CRY was an obvious choice for me as they’ve done so much for my family and I when we were younger. When I was just six years old and my Brother hadn’t even turned two yet we lost our Dad, he was just 34 years old himself. This […]
I’m always right! Friday 15th December was the one day I wish that hadn’t been true. That was day that after months, well years, I finally got a diagnosis. Brugada! A hereditary condition that puts me at risk of cardiac arrest (apologies if that’s not quite definition it’s all still very new). I’m first in […]
The 9th December 2016 isn’t a key date for me. On that day, I was with my Mum, Dad and younger Sister, who were finishing up from undergoing their Flecanide Challenges…which all fortunately came back clear, which was a huge relief. At 18:30 I received a phone call from my Cardiologist, who went on to […]
On Tuesday the 21st of February I was sent home from work a little early as I was feeling unwell. My colleague had only recently returned to work after having the flu so I assumed I was coming down with something similar. My manager asked me to call in the next day if I was […]
Watch myheart member, Joseph Tanner, talk about his experience of having an ICD implanted. Hi, my name is Joseph tanner. I was diagnosed with Brugada syndrome in 2008 and I was told that I was going to have an ICD implanted. And at first thought I was really scared. I didn’t know what was going […]
myheart member, Joseph Tanner, talks about his experience of taking part in the Brighton Marathon, 2015 below. This story begins on Sunday 16 March 2008; I entered the Hastings Half Marathon. The week before the half marathon I had a cold, and at the time I didn’t think much of it. On race-day I felt […]