Brugada Syndrome Diaries

When thinking about fundraising for a charity, CRY was an obvious choice for me as they’ve done so much for my family and I when we were younger. When I was just six years old and my Brother hadn’t even turned two yet we lost our Dad, he was just 34 years old himself. This […]

The price of always being right! by Charlotte Monins

I’m always right! Friday 15th December was the one day I wish that hadn’t been true. That was day that after months, well years, I finally got a diagnosis. Brugada! A hereditary condition that puts me at risk of cardiac arrest (apologies if that’s not quite definition it’s all still very new). I’m first in […]

Brugada and me by Laurie Ketley

The 9th December 2016 isn’t a key date for me. On that day, I was with my Mum, Dad and younger Sister, who were finishing up from undergoing their Flecanide Challenges…which all fortunately came back clear, which was a huge relief. At 18:30 I received a phone call from my Cardiologist, who went on to […]

This is a brief outline of how I came to know CRY, join myheart, and join MedicAlert

Shortly after university finals in 2010, I had a second ajmaline challenge (drug assisted ECG) in London under Professor Sharma’s team, with the unexpected result that I was positive for Brugada syndrome – unexpected because 18 months previously I’d received the all clear at a local hospital. However unequivocally grateful and relieved I’d been with the negative result, the registrar’s approach and manner […]

Joseph Tanner talks about doing the Brighton Marathon

myheart member, Joseph Tanner, talks about his experience of taking part in the Brighton Marathon, 2015 below. This story begins on Sunday 16 March 2008; I entered the Hastings Half Marathon. The week before the half marathon I had a cold, and at the time I didn’t think much of it. On race-day I felt […]

Paula Beck

Living with Brugada syndrome Watch myheart member Paula Beck speak with Professor Sharma about having Brugada syndrome below.

Sarah Bond

Living with Brugada syndrome I’m Sarah. In January 2012 I was diagnosed with a heart condition known as Brugada syndrome, something that I have had since birth yet was completely unaware of – living like any other healthy 31 year old woman; going to the gym, work and starting off newly married life with my […]