My heart condition’s 25th anniversary by Kerry Shephard

Today (03/02/2020) marks 25 years since my heart went crazy and hit 268 beats per minute while I was brushing my hair and getting ready for college. 25 years since the doctors battled to save me in resus by stopping my heart twice and rebooting it. 25 years since I was told I was unique […]

Ablation and the Road to recovery

#TEDICATED – CHAPTER 3 – CARDIAC ABLATION AND THE ROAD TO RECOVERY It has been some 8 months since my diagnosis of Wolff-Parkinson-White Syndrome. (see previous post) A lot has happened in this time, which have put a temporary hold on a few activities. This post is about my Catheter Ablation treatment, how it went […]

Zenia Selby- earlier diagnosed with WPW

I was out on a 5k run when suddenly my heart started beating several times faster than it should have been. I stopped, sat down, breathed deeply, but nothing would stop it. I was in the middle of a wood when it happened, exactly halfway through the run and so about 2.5k away from home. After […]

Chris Smith

Living with Wolff-Parkinson-White syndrome I underwent a catheter ablation procedure in November 2009 after being diagnosed with Wolff-Parkinson-White (WPW) syndrome in May 2009 following a CRY screening at Myerscough College in March 2009. I was a fit and healthy swimmer in my final year at school, I trained at my club 5 times a week and […]

Louise Bees

Living with Wolff-Parkinson-White syndrome Hi, I got diagnosed with Wolff-Parkinson-White syndrome (WPW) after nearly dying giving birth to my son. I had suffered with palpitations for years, but nothing was done about it. Then, whilst I was pregnant, the attacks became more frequent and when I told my doctor I was given a 24-hour heart monitor […]

Ian Tunnell

Living with Wolff Parkinson White syndrome I would like to recount the circumstances surrounding my son’s experience of Wolff Parkinson White syndrome (WPW) in the hope that other young people, particularly students, will take heed and (a) register with a GP, and (b) go to see them when they’re not well. We had taken Ian […]

Francesca Maretic

Living with Wolff Parkinson White syndrome My name is Fran and I’m an average girl except for the fact that at the moment I have Wolff Parkinson White syndrome (WPW). WPW means I have an extra pathway in my heart and sometimes my heart will beat really fast because of this. The first time I […]

Jenny Justice

Living with Wolff Parkinson White syndrome I had Wolff-Parkinson-White syndrome (WPW) when I was a child. I remember waking up because my heart would start beating very rapidly and for about 2 or 3 years my parents thought I was exaggerating when I told them my heart was beating fast. As I grew into a […]

Ellie Brogan

Living with Wolff Parkinson White syndrome My name is Ellie Brogan, I am 15 years old and suffer from Wolff Parkinson White syndrome (WPW). I really want to raise money for your charity and thought I would start by telling you my story and the reason why I want to raise money. When I was 7 years old, […]

Lyndsay Morton

Living with Wolff-Parkinson-White syndrome When I was 19 I was woken by a paramedic at 3am one morning. The paramedic had been called by my partner because I had stopped breathing and started fitting in my sleep. Subsequently I was told that I was “stressed and its nothing to worry about”! I kept getting severe […]