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Raising Awareness and Funds during the CRY RA Week by Stephanie Young
During the week of 20th – 24th November, Forest Hall Primary School held a whole fundraising week for CRY. We are a small school, with less than 200 children, and everyone got involved! I am a teacher there and the children loved the whole week! We started our week with an assembly about CRY and why we were raising the
Brugada and me by Laurie Ketley
The 9th December 2016 isn’t a key date for me. On that day, I was with my Mum, Dad and younger Sister, who were finishing up from undergoing their Flecanide Challenges…which all fortunately came back clear, which was a huge relief. At 18:30 I received a phone call from my Cardiologist, who went on to tell me I had Brugada
CRY Parliamentary Reception 2017
The CRY Parliamentary Reception 2017 at the House of Commons was attended by 6 myheart members – including three myheart Representatives – on November 22nd. Tim Butt, Jessica Maranzano, Zenia Selby, Joseph Tanner and Sinead Watts travelled to Westminster for the prestigious annual event at which CRY Patrons, Representatives, Research Fellows and MPs gather to raise awareness of inherited heart
I thought I had a flu but then I suffered a cardiac arrest! by Jake Fordham
On Tuesday the 21st of February I was sent home from work a little early as I was feeling unwell. My colleague had only recently returned to work after having the flu so I assumed I was coming down with something similar. My manager asked me to call in the next day if I was still feeling unwell but hoped
I suffered a cardiac arrest at my sister’s wedding!! by Carly Williams
I have no diagnosis for my SCA yet. It happened in July this year and I have had all the tests but the cause is still unknown, I have MVP but they have said that is unrelated. I am 34 And was at my sister’s wedding as maid of honour. As I walked down the aisle, I told my friend I
I was diagnosed with LQT after 20 years..by Rebecca Scheffe
My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called but he suggested it was
My journey with ARVC by Gavin Boyce
My journey with ARVC started on January 16th 2012 when I woke up in hospital to see a nurse looking back at me trying to offer me some reassuring words. She said I was in hospital and that there was a lot to explain, she was going to call my wife to let her know that I had come around.
Living with a Fontan Circulation – Tricuspid Atresia by Jara Weinkauf
Even though there was no history of heart disease in my family and my parents led a very healthy lifestyle, I was born with tricuspid atresia in 1986 in Berlin/Germany. Doctors noticed that my skin was very blue and something had to be wrong with me. After a palliative operation as a baby, I had a Fontan surgery when I
A simple heart screening could save your life! by Nicola Kenton
I am a geography graduate of the University of Birmingham and the former online editor of the sports section of Redbrick – the university’s paper. “Have you ever heard of Fabrice Muamba?” was the message my doctor greeted with me, not knowing I was a sports fan but the answer was of course yes, “It’s similar to his heart condition.”
