I was diagnosed with LQT after 20 years..by Rebecca Scheffe
My name is Becky and I was diagnosed with Long QT Syndrome in 2010 when I was 37 years old. At the age of 17, I had a terrible experience as I went to bed one evening and had my first seizure, it was so terrifying I thought I was dying. The doctor was called but he suggested it was
My journey with ARVC by Gavin Boyce
My journey with ARVC started on January 16th 2012 when I woke up in hospital to see a nurse looking back at me trying to offer me some reassuring words. She said I was in hospital and that there was a lot to explain, she was going to call my wife to let her know that I had come around.
Living with a Fontan Circulation – Tricuspid Atresia by Jara Weinkauf
Even though there was no history of heart disease in my family and my parents led a very healthy lifestyle, I was born with tricuspid atresia in 1986 in Berlin/Germany. Doctors noticed that my skin was very blue and something had to be wrong with me. After a palliative operation as a baby, I had a Fontan surgery when I
A simple heart screening could save your life! by Nicola Kenton
I am a geography graduate of the University of Birmingham and the former online editor of the sports section of Redbrick – the university’s paper. “Have you ever heard of Fabrice Muamba?” was the message my doctor greeted with me, not knowing I was a sports fan but the answer was of course yes, “It’s similar to his heart condition.”
I suffered a cardiac arrest four years ago but I am still undiagnosed! by Lee Gerrard
I was 32 when I had my cardiac arrest. I was with my best mate and my fiancee who was 8 months pregnant. I have no recollection of the day, no symptoms and no chest pains. I remember pretty much everything up until the attack. I have had various tests to see a cause but this still remains unknown. Luckily
myheart enewsletter July-Sept 2017
Dear myheart members Please find in this e-newsletter information on: Raising Awareness and Funds by myheart members myheart in the news/on TV Activity on the website CRY Raising Awareness Week Upcoming myheart meeting Read the full enewsletter here.
I didn’t know I had suffered a cardiac arrest until 3 days later…by Lucy Patey
In February 2017, my wife, Zoe, our 13-month-old daughter, Frankie-Louisa, and I were visiting a friend in Lincoln. We had a nice dinner and I had one beer. Then, we went to bed. I woke up at 3am to go to the toilet but instead collapsed on the floor. The next thing I remember was that I was on the
Diagnosis following a CRY screening by Rachel Collins
In November 2015 CRY did a screening programme at my place of work. I had no symptoms but went along and they found an atrial septal defect (hole in the heart), a congenital heart defect I’ve had since birth. Due to the increased volume of blood, the right atria was enlarged which, in time, would likely be damaged and it
Teenager diagnosed with heart condition encourages others to get screened
ITV News – 29th July 2017 Tenby teenager Frank Arentz, who was diagnosed with hypertrophic cardiomyopathy at a CRY screening event has spoken out about his condition in the hope it will encourage others to be screened. Read more
CRY Heart of London Bridges Walk 2017
Sunday, 9th July witnessed a huge number of walkers gathered at London’s scenic green space, Potters Fields Park, with 1,423 walkers registering to take part in CRY’s 11th annual Heart of London Bridges Walk. As ever, it was incredibly moving to see so many people coming together to walk in memory of a friend or family member. It was also an