Author: myheart Coordinator

Paul Cowling-DCM

Before I share my experiences and try to give some idea of how I try to cope with what has happened, one thing should be made very clear: having a heart condition sucks. I mean, it really sucks. It’s a massive thing to have to comprehend; that the core element of us, the heart, doesn’t work as it should. Or

Joseph Tanner talks about having an ICD implanted

Watch myheart member, Joseph Tanner, talk about his experience of having an ICD implanted. Hi, my name is Joseph tanner. I was diagnosed with Brugada syndrome in 2008 and I was told that I was going to have an ICD implanted. And at first thought I was really scared. I didn’t know what was going to happen. And on the

Joseph Tanner talks about doing the Brighton Marathon

myheart member, Joseph Tanner, talks about his experience of taking part in the Brighton Marathon, 2015 below. This story begins on Sunday 16 March 2008; I entered the Hastings Half Marathon. The week before the half marathon I had a cold, and at the time I didn’t think much of it. On race-day I felt all right, although I texted

Zenia Selby- earlier diagnosed with WPW

I was out on a 5k run when suddenly my heart started beating several times faster than it should have been. I stopped, sat down, breathed deeply, but nothing would stop it. I was in the middle of a wood when it happened, exactly halfway through the run and so about 2.5k away from home. After about 10 minutes of resting,

Paula Beck

Paula Beck (Simmonds) wrote her story to be included in the myheart booklet which was launched in November, 2013. I was diagnosed with Brugada syndrome on 8th August 2011 at St George’s Hospital. I am a mum of two, one of four siblings and was only 30 when diagnosed. Our family underwent tests after my brother (Craig) suddenly died in

Alessandro Miccoli

Alessandro Miccoli wrote his story to be included in the myheart booklet which was launched in November, 2013. It wasn’t until the end of 2012 that a journalist first introduced me to the charity CRY. I quickly became aware of the amazing work they do in helping promote awareness of heart conditions in the young. Since my early teens, heart

Emma Jackson

Emma Jackson wrote her story to be included in the myheart booklet which was launched in November, 2013. I never liked sports when I was younger and was never any good. I remember having strange missed beats, tiredness and slight dizziness but thought this was normal. It was pure chance that a doctor noticed a heart ‘murmur’ prior to knee

Sian Donnelly

Sian Donnelly wrote her story to be included in the myheart booklet which was launched in November, 2013. Whilst on a family holiday in 2004, my brother Adam died suddenly whilst playing volleyball at our hotel. After two post-mortems we were told that he had died from SADS (sudden adult death syndrome). At the time, we were completely unaware of any