Danielle Cummings

Living with hypertrophic cardiomyopathy I was diagnosed with hypertrophic cardiomyopathy as a baby. My dad and the majority of his family suffered from the disease. It was my parents’ decision for me to undergo genetic testing, which came back positive for having the gene but not the disease. While growing up I had biannual checkups […]

Dan Reeves

Living with hypertrophic cardiomyopathy December 3rd 2010 started out as any other normal day (although, when I look back now it’s as if the day was already planned out). School was closed as the weather had been bad all week and buses couldn’t get through. I had been at work that morning but as the […]

Jack Wright

Living with hypertrophic cardiomyopathy Jack, our six year old son – usually referred to as Jack Wright – left for school as usual on the morning of Tuesday 20th June 2006. He was arguing with his eleven year old sister Abigail and Mum Tracey on the way out of the front door, with his hair […]

Andy Perry

Living with hypertrophic cardiomyopathy My name is Andy. I’m now 38 and at the tender age of 7 after dental treatment, I was ill and taken to the local hospital. After several tests they diagnosed me with a heart murmur. Several years later, attending senior school aged 11, I was taken ill doing sports. My […]

Fraser Thomas

Living with hypertrophic cardiomyopathy I am one of the few lucky parents as my son, Fraser, survived a full cardiac arrest while playing football last year. He had no previous symptoms or illness and was saved thanks to two medical students who happened to be playing football that day and also a mobile defibrillator that […]

Russell Goodman

Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition A healthy way to start the weekend, get up Saturday morning and go for a run. This was something my fiancée Charlotte and I enjoy regularly, sick this one however was very different. After being out for just over an hour running the streets […]

Myomectomy

A myomectomy may be recommended if you have hypertrophic cardiomyopathy (HCM) with obstruction to the blood leaving your heart, and your medication is not controlling your symptoms. With this procedure, part of the enlarged septal muscle causing the obstruction is shaved away. A myomectomy usually involves open heart surgery, although it can now also be […]