Rachael Marchant
Living with an implantable cardioverter defibrillator (ICD) and an undiagnosed condition At the age of 22 I noticed my heart seemed to ‘jump’ around and beat in an unusual way. I contacted my GP on a particularly bad day and was referred to a cardiologist. I spent 5 years under the cardiologists care and received […]
Chris Smith
Living with Wolff-Parkinson-White syndrome I underwent a catheter ablation procedure in November 2009 after being diagnosed with Wolff-Parkinson-White (WPW) syndrome in May 2009 following a CRY screening at Myerscough College in March 2009. I was a fit and healthy swimmer in my final year at school, I trained at my club 5 times a week and […]
Sarah Bond
Living with Brugada syndrome I’m Sarah. In January 2012 I was diagnosed with a heart condition known as Brugada syndrome, something that I have had since birth yet was completely unaware of – living like any other healthy 31 year old woman; going to the gym, work and starting off newly married life with my […]
Danielle Cummings
Living with hypertrophic cardiomyopathy I was diagnosed with hypertrophic cardiomyopathy as a baby. My dad and the majority of his family suffered from the disease. It was my parents’ decision for me to undergo genetic testing, which came back positive for having the gene but not the disease. While growing up I had biannual checkups […]
YBFIT by Paula Simmonds
My brother died suddenly, aged 31, in Australia. He was very fit and healthy. As a result, my family and I had to undergo genetic heart testing. Some of my family, including myself, were diagnosed with a hereditary heart condition called Brugada syndrome. Through this I was introduced to Cardiac Risk in the Young (CRY) […]
Clipper for CRY by Jennifer Hill
My name is Jennifer Hill, I’m 32 and writing this article on my return from Australia. Holidays in Australia may conjure up images of sun, sand, surf, sightseeing and sipping cocktails but for me there was endless sea salt, giant ocean swell, soggy clothes, battling storms in the Southern Ocean, relentless sail hoisting and constant sleep […]
Marfan’s syndrome
Marfan’s syndrome is a disorder that affects many parts of the body including the heart, blood vessels, skeleton, and eyes. One in 5000 people in the United Kingdom have Marfan’s syndrome and both men and women can be affected. People with Marfan’s syndrome produce abnormal connective tissue. Connective tissue helps hold the body together, binding […]
Midlands myheart Meeting – Sunday 16th November 2014
The next Midlands myheart meetingwill be held on Sunday 16th November, between 10am – 4pm, in Macdonald Burlington Hotel, Burlington Arcade, 126 New Street, Birmingham, B2 4JQ. Directions to the hotel can be found here. If you have questions about your condition or would like to meet other young people, aged 14 to 35, coping […]
Midlands Parent Support Session – Sunday 16th November 2014
The next Midlands parents support session will be taking place at Macdonald Burlington Hotel, urlington Arcade, 126 New Street, Birmingham, B2 4JQ, between 2pm-4pm on Sunday 16th November. Directions to the hotel can be found here. This session is for parents whose child has suddenly been diagnosed with a dangerous heart condition and would like to meet […]
South East myheart Meeting – Sunday 19th October 2014
The next South East myheart meeting will be held on Sunday 19th October, between 10am-4pm, in Holiday Inn London Sutton, Gibson Road, Sutton, Surrey, SM1 2RF. Directions to the hotel can be found here. If you have questions about your condition or would like to meet other young people, aged 14 to 35, coping with the […]