myheart booklet
Increasingly effective treatments and intervention and an ever-developing understanding about the genetics behind many of these conditions is being discovered everyday. As this new booklet – launched today at a prestigious event at the House of Commons – explains, despite the reassurances from expert doctors, friends and family, such a diagnosis can still have devastating […]
Atrial fibrillation references
1. Stewart S, Hart CL, Hole DJ, McMurray JJ. Population prevalence, incidence, and predictors of atrial fibrillation in the Renfrew/Paisley study. Heart. 2001;86:516–521. 2. Nabauer M, Gerth A, Limbourg T, Schneider S, Oeff M, Kirchhof P, Goette A, Lewalter T, Ravens U, Meinertz T, Breithardt G, Steinbeck G. The Registry of the German […]
Atrial fibrillation
Atrial fibrillation (AF) is the most common heart rhythm disorder. It affects around 1-2% of the overall population. It is more common in men and is increasingly common as people age [1]. While it is associated with other medical conditions such as high blood pressure, obesity and other types of heart disease [2], people who are otherwise fit and healthy may still develop AF.
Emmerson Hird
On Wednesday 6th June 2012 my 17 year old nephew Emmerson Hird survived a cardiac arrest. Emmerson had been playing upstairs on his X-box with his girlfriend Micha. As he went to get up he fell down onto her. At first she thought he was messing about but quickly realised something was wrong and shouted […]
Jessica Goddard
Living with long QT syndrome Jessica Jane Goddard was born on the 27th July 2007. She was 3 years old when in May 2010 we received a phone call that would change her life forever… My name is Rebekah Goddard and I am Jessica’s mother. I was diagnosed with long QT syndrome in July 2001 at […]
Rebekah Goddard
Living with long QT syndrome Even at the age of nine the signs were there, but no one realised what they meant. I recall going home from school near to tears as I had, had a ‘panic attack’ in the school assembly hall…. yet again. My heart pounded and I felt sick as well as […]
Technical Terms
Alcohol septal ablation If you have HCM that makes you breathless, dizzy or suffer chest pain, this may be due to blockage of the flow of blood from the main pumping chamber in the heart due to thickening of the heart muscle. An injection of alcohol into the blood vessel supplying this bit of muscle […]
Gary McElkerney
Living with my condition supraventricular tachycardia, struggling with my head Limerick Vikings American Football Team were always going to be a tough team to play and making the 5 hour coach journey to Limerick University was always going to be a disadvantage. It was the 25th July 2009. I got off the coach after a […]
Dan Reeves
Living with hypertrophic cardiomyopathy December 3rd 2010 started out as any other normal day (although, when I look back now it’s as if the day was already planned out). School was closed as the weather had been bad all week and buses couldn’t get through. I had been at work that morning but as the […]
Abi
Living with right ventricle outflow tract ventricular tachycardia (RVOT-VT) My condition came to light at the end of 2008 when I was 34. I’d been to the doctors to discuss these strange palpitations and dizzy spells I’d been experiencing, but was sent away and told it was due to “stress”. This seems to be the […]